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Welcome to the PainSupport Newsletter
Editor: Jan Sadler, MBE No.247 October 2015

Welcome to the latest PainSupport newsletter. In our newsletters we give you top tips and techniques so you can live as full a life as possible.

Come and join us on our Forum for your concerns and comments.
Go to our Shop for books, relaxation CDs and Downloads.

First, read our take on the ever popular topic about how to handle visits and visitors...


Visits and Visitors
by Jan Sadler
I live in the far southwest of the country which is a popular holiday destination. Every year various members of my family and friends book holidays nearby and come to visit me. This year I had a bumper crop of visitors.

These visitors know me and my limitations well, so the visits are enjoyable. They don't overstay or expect me to do things I find difficult. We have fun catching up with each other and, with all their stories, help me to keep in touch.

I know how easy it is to become isolated and feel left out when in pain. It's important that we make the effort to stay connected with other people in whichever ways we can.

Here are a few suggestions to help make visits as enjoyable and stress free as possible.
  • Enjoy your visit and visitors!

  • The key to being able to relax and enjoy the occasion is forward planning.

  • If your visitors aren't already aware of your situation, discuss with them what you can manage to make visits easier for you. If you can only have visitors for a short time, say so. For me, depending on how I am, I range from 30 minutes to an hour maximum.

  • If your pain levels start to become uncomfortable, take the initiative yourself. Don't wait for someone to say, 'Are you all right?' Take things into your own hands. Be matter of fact and say, 'Excuse me, I'll be back in a moment.' Then, quietly, slip out to another room or walk outside and try to relax for five minutes or so.

  • You may prefer not to talk about your health issues. If so, steer the conversation away from yourself. A good method is to ask questions starting with Who, How, Which, Why, When, Where, What. This encourages people to reply in length, rather than give a Yes or No answer.
    People love talking about themselves and they will go away thinking they've had a great time! You may learn lots of new things too. Everyone has a story to tell.

  • Plan to have a quiet day the day before seeing people, and a rest day afterwards.

  • If your visitors are slow to go, try saying something like this,
    'Well...' as you stand up or get their attention, 'It's been absolutely lovely to see you...'
    Most visitors will take the hint and leave promptly.

  • After the visit, you may like to jot down what worked and what didn't, and what it might be better to do another time. Then congratulate yourself and indulge in a good rest!
With careful planning and pacing you will be ready to make the most of your visit and visitors and enjoy a really good time.

Make contact with others.
No-one understands the full experience of pain like another person with a similar condition. If you aren't already a member of the PainSupport Contact Club and/or our Discussion Forum and could do with some extra support, you are most welcome to join us.
Forum and Contact Club

Did you like this article?
Send us your comments, we love to hear from you.
Email us at PainSupport here
or use our Contact form here

Help others to understand your pain
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If you find it difficult to explain your energy and pain levels, try the spoon theory:
Spoon Theory website

and WikiHow cartoons:
Understand someonewith chronic pain

'Struggling to be me' on YouTube:
YouTube video

and our forum topic:
To pass on to family and friends

There's a section on good relationships on our website:
Making Good Relationships

An Invitation…
woman with tablet
Visit our Discussion Forum

If you haven't yet been to our forum, take a look and bookmark it. There may well be a question you can answer for someone, or you may want to post a question of your own - or just read the entries, they are always interesting.

have much to offer them, and they have much to offer YOU. Ease the pain by sharing your experiences and helping others with those who understand a life with pain.

Here is a wonderful message recently received from A.M., a UK member:

I just wanted to thank you for all the encouragement that I have had from you and your other members. I’ve found the help from everyone an absolute blessing. My Doctor mentioned your website to me. Joining is the best thing I ever did.

Visit our Discussion Forum

A question?

Do you have any practical day to day challenges with pain and how it affects your life? If you do, you are welcome to send your question to me for discussion in a future newsletter. You would remain anonymous, of course. Whatever affects your life probably affects many of us. This is a great way to support each other.

Email PainSupport here

or use our online Contact Us form here

Volunteers needed for study on Fibromyalgia in the north-west of England.

Do you have widespread consistent pain due to Fibromyalgia for at least the last 3 months?

MAC Clinical Research would like to hear from anyone diagnosed with this condition that may wish to participate in a clinical trial to assess a potential new treatment.

The study will involve up to 12 visits and 3 telephone calls over a period of approximately 21 weeks to MAC's Manchester, Cannock, Leeds or Blackpool clinics.

There is no cost involved and eligible patients will receive a comprehensive health screen and extended medical care including a 52 week Open Label extension which will allow participants to have on-going access to an effective but otherwise unobtainable medication.

Study participation will be in collaboration with the patient’s treating physician.

Transport may be provided or reasonable travel expenses will be reimbursed

Find out more here:
Register as a volunteer here:
Any queries to Cathy Jepson: email Cathy here

It worked for them!
pill bottle opener
Pill bottle opener
PainSupport member B.K. recommends the Pill Bottle Opener. He says,
The pill bottle opener is made from rubber and slips over a pill bottle lid. It's ribbed inside and out to get a good grip. It fits comfortably into my hand. It is ideal for anyone with limited hand strength and gripping ability. www.mobilitysmart

exercise ball
Stability Exercise Ball
PainSupport member R.E. says,
I'm hooked on using an exercise ball for the back. I use it to sit on, also, as it's more comfy than chairs. room

Please tell us!!
If you try any product or idea that helps you in some way please let us know. Even if it only reduces symptoms a little, it may help others too.
Email PainSupport
Contact Us here

Check with your doctor and/or physio before starting new exercises or movements to make sure they are suitable for your specific condition.

Relaxation for pain control

All of Jan's CDs have been voted top relaxation CDs by people such as, Holland and Barrett and Woman's Weekly Magazine. Full details from our Shop

A Good Night's Sleep Get A Good Night's Sleep! Our CD is rated the top sleep CD by Woman's Weekly, it really does work, sleep virtually guaranteed.
CD or book, including the CD
Pain Relief Without Drugs Our highly recommended Pain Relief Without Drugs CD is ideal for anyone with pain. The first track is a short talk by Jan, which is followed by five different truly relaxing tracks.
CD or book, including the CD
Relax and Release your Pain Choose 'Relax & Release your Pain' for lovely relaxation tracks plus self-management tips for pain relief.
Perfect Relaxation 'Perfect Relaxation' is just what its name says. Eight different tracks of perfect relaxation. Explore a tropical paradise, take a walk by the sea, relax by a stream or discover your own secret hideaway.
Pacing Workbook And, of course, our popular 'Pacing for Pain Relief Workbook' for just £3.00.

Jan's CDs always include simple techniques for breathing for pain relief. Also, of course, there are tracks for pure relaxation using visualisation and relaxation techniques. All you need to do is listen to Jan's soothing voice and your pain and tension will float away!

Go to our Shop to download or buy CDs or books.

Just for You - worksheets and downloads all at no charge
NB Print the above two Pain Logs to keep track of your pain and find out what affects it. Use your Logs to show your doctor how your pain affects you.

Discussion Forum
Some of the latest forum topics - join in and have your say!

Nerve pain medication
Volunteers required for new drug trial for diabetes.
Problems after hip replacement
Painkillers and tiredness
Spinal Cord Stimulator (SCS)
SCS Blog by PainSupport member

Some of our most popular general interest topics
The latest good books as recommended by our members
Laughter is the best medicine See our bank of jokes
Hobbies and Crafts Album Photos of members' craft work.
Plants and Gardens Garden chat and photos of members' gardens
Easy Meals Lots of ideas for quick to prepare meals
'Today I am...' A snapshot of each other’s lives. What's going on with you today?
For those in pain to pass on to family and friends to help them understand.
PainSupport logo

Social Media
Air your difficulties. Talking to others about your problems is good for you. It's also incredibly good for you when you give your support to others. Take a look at what we offer...
Discussion Forum
Contact Club

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Laughter is the best medicine

smiling girl cartoon

What sort of dog do magicians have as a pet?

What's the difference between a hippo and a Zippo?
One is really heavy, the other is a little lighter.

My cat is recovering from a massive stroke.

I’ve been revising for a practical exam on pest control;
I was up all night swatting.

We have thousands of jokes in our Laughter is the best medicine series on the Forum, here's a link to all the latest:
Visit our Joke Bank

You are welcome to add some jokes too - as long as they are nice and clean, of course!

Editor's Note

We hope you've enjoyed the PainSupport newsletter and find the information useful. Send us your comments and items for the newsletter, we love to hear from you.

Email PainSupport here
or use our online Contact Us form here
Jan Sadler, MBE

All best wishes - keep smiling - and keep moving!
Jan at PainSupport

More about pain relief here

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You may print the above Newsletter for your own personal and private use but if you wish to use all or part of it for any other reason, please ask first. Copyright belongs to Jan Sadler.

Many of the tips, treatments, herbs and supplements mentioned in this newsletter are not from medical sources. Check with your doctor and use your own discretion before trying any of the suggestions to ensure they are suitable for your condition and to avoid interaction with any medication you are taking. Always have any undiagnosed pain checked out by a doctor.

PainSupport is not responsible for the content of any other website mentioned. PainSupport NEVER passes on your email address to anyone else without your prior permission.

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© Jan Sadler 2015