rdolly

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Viewing 15 posts - 1 through 15 (of 42 total)
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  • in reply to: Pain Relief?? #47548
    rdolly
    Participant

    Thanks for the comments and peoples ingenuity and determination is amazing and inspiring. I’m not a swimmer like Lc but if I could walk round crouched down I would be fine. So thanks you warriors, I know I’m not alone.

    in reply to: Right side upper abdomen pain #47214
    rdolly
    Participant

    Could it be the bile duct?

    in reply to: Severe sciatica pain ruining my life #45963
    rdolly
    Participant

    So sorry to hear how this unbelievable pain can knock you off your feet. I suffer chronic sciatic pain due to a spinal cord stenosis. I have tried everything from paracetamol to morphine and nothing helps, so in desperation I bought some Salon pas patches from Boots, had them checked by the pain clinic nurse and was told they wouldn’t do any harm, they contain an analgesic and some sort of pain relief gel I think, any way it gave me a couple of hours reduced pain not free from but I did notice a difference, enough to move around without wanting to cry. Now all this sounds pie in the sky but there is a small respite from agony and its replaced by pain. The neuro surgeon I see won’t intervene until I become incontinent, and I am determined that won’t happen. So these are my crutch if you like. Hope you find something that helps, good luck.

    in reply to: Thalamic PainSyndrome following brain stem stroke #45295
    rdolly
    Participant

    Hello, I am so sorry you have so much to contend with, even more sorry that I don’t know the answer. Life can be very cruel and some of us get a worse deal than others. I hope you can find a way to get through this part of your journey and can come through it. I know the alternative is in your thoughts but there’s no going back from that action so please re think and find even more strength to get through. Take care xx

    in reply to: Holidays #45227
    rdolly
    Participant

    Where else would we get this sort of feedback, I suppose we’re all in the same or similar boat so can talk with some knowledge but it is amazing. My pain management nurse checked the patches for me and made sure they were ok so maybe you could ask about them. I really hope you get some relief Laura and a change of scenery can work wonders.
    Take care and let us know how things go.
    Ann (rdolly)

    in reply to: Can anybody recommend a GOOD READ? #45214
    rdolly
    Participant

    Anything by Harlen Coben or Linwood Barclay. That is if you like who/ what/ why and how done it type books.

    in reply to: Holidays #45213
    rdolly
    Participant

    I know how this can ruin even a few days away, the thought of even the slightest increase of pain can be soul destroying. By chance I bought some patches from the chemist, now I’ve had everything from paracetamol to morphine so nothing to lose. Well although they didn’t take the pain away they took the edge off my pain and enabled me to have a few days away with my husband, the patches are called Salonpas and my pain management nurse said they have an analgesic and menthol mix so could help and she was right. I have a spinal cord stenosis so as well as the crippling back pain I have permanent sciatica. They’re not a miracle cure but for £7.50p for 5 there’s not a lot to lose and anything is worth a try. Hope you get to go away and enjoy a change of scenery.

    in reply to: Restless legs #44265
    rdolly
    Participant

    Hi Di, I have suffered from Restless Leg Syndrome for many years, it is a curse at best and at worst, well I’ve not got words to describe how bad it can get, night after night with little or no sleep until my GP first prescribed Pramipaxole then added Pregablin and at the moment after years of trying every conceivable concoction from alcohol, which I don’t like to Quinine tablets, corks in the bed, legs wrapped in cold cloths gallons of hot milk, long walks before bed, stretching my legs till it became too painful to now where I feel confident going to bed as I’m almost sure of some sleep, I do hope your friend gets some help from their GP it’s the only place to get real advice.

    rdolly
    Participant

    Can anyone tell me the difference between a spinal cord stenosis and spinal cord fusions please.

    in reply to: Has anyone had a spinal nerve block injection #41372
    rdolly
    Participant

    It took a good 10 days for me to feel the benefit this time, the injection site was a bit delicate for a few days but so worth it, hope you get some relief soon.

    in reply to: Has anyone had a spinal nerve block injection #41351
    rdolly
    Participant

    I have been having nerve block injections under x ray guidance every 6 to 8 months since 2010, I have a spinal cord stenosis L5, this means constant sciatic pain as well as severe “ordinary” back pain and numbness down my right leg, I’ve had varying degrees of success, the latest done on 4th Jan has been great, its wearing off now but I’ve had such a great time since January, walking on my own!!!!, it hasn’t been perfect still need help for certain things but so worth it, I wish you well and hope you have some success and get some relief I think anything is worth a try when you’re in so much pain. Good Luck,

    in reply to: 9 months wait for a nerve block #41117
    rdolly
    Participant

    Is it your first? I waited about 6 weeks for my 1st and have 6/8 months in between since then, had my 9th on 4th Jan. I do hope you can get it altered, try ringing the doctors secretary and ask if they can bring it forward, I’ve done that in the past and have had it changed. I’m in the north west so maybe it’s a question of areas, good luck.

    rdolly
    Participant

    I’m so sorry to hear of your awful situation, you must feel really low,
    I along with everyone else wishes they could help, only bit of personal info I can relate to you is Tramadol affected my vision so much so I wasn’t prepared to carry on taking them, try and remember always be kind to yourself.

    in reply to: Repinerol #40919
    rdolly
    Participant

    Not been offered this or heard of it but do take Pramipexol for restless leg problems, combined with Quinine they help.

    in reply to: Happy New Year and it's that time again!!!! #40803
    rdolly
    Participant

    Hello, just a quick “show off” I went in the supermarket on my own yesterday, didn’t buy a great deal but did manage it myself, I haven’t been able to do that for so long I felt really good, standing still is a problem for me the pain seems to intensify when I don’t move so I queued on my own and unpacked the trolley and stood still!!!!! I know its not going to last but at the moment I feel so much better.

Viewing 15 posts - 1 through 15 (of 42 total)