Lc

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Viewing 15 posts - 1 through 15 (of 1,018 total)
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  • in reply to: Mattress topper #48041
    Lc
    Participant

    Hi Christine, I used to use a memory foam topper and during summer also found it hot, but just invested in a tempur cooltouch mattress. which i picked up from Dreams. I found this is much better and you don’t sweat like the memory foam. personally I found a lot better and pressure relief is better to. expensive but well worth it. I think. they are doing a few deals at the moment to. Dreams also done a sleep bed which gives you guidance to the best mattress for you, also do toppers to. I thought was well worth a visit. take care and best wishes, Lee

    in reply to: Brain fog thru tablets #48005
    Lc
    Participant

    Hi Colette, Welcome to this site,there is a lot of info and different methods of pain relief in blue at top of page, just click on a link and have a browse especially Resources and Pain Relief. or you can type a condition into the search forums box and click search top right of page above login.It will come up with all posts that mention the condition.
    That is the trouble to many or certain medications can cause brain fog. this is why a lot of people get to a point like myself and try and lower the amount /strength of tablets to a minimum and find alternative ways to cope and deal with your condition especially chronic pain whatever the cause.and we all know that with long term pain comes depression /anxiety and many , like myself have suffered and been around the NHS system a few times. we are a friendly lot on here and you can talk about anything your dealing with and someone will answer you but may take a few hours but it will get answered. any questions or concerns just post it we are sympathetic and truly understand what your going through, there are people on here who suffer and array of conditions and many who have more than one.
    take care for now and best wishes,Lee

    in reply to: CBD Oil #48003
    Lc
    Participant

    Hi Spursboy, The only nerve drug that works quite well for me is Amitryptiline, gabapentin , lyrica and the rest like that,i had adverse reactions,could not tolerate or did not work.nerve injections ,ablations did not work or very short lived. they did tell me that I can up the amitryptiline but did not want to, but do sometimes take an extra one when really bad then go back to my usual dose. like I said above a TENS machine I find quite good when bad. it doesn’t take pain away and is no cure but for me it masks the intensity of nerve pain I just keep alternating the different pulses on it every half hour or so, so body doesn’t get used to it . I sometimes wear it for days but don’t sleep with it on. other than that I use mindful meditation /visualization technics,CBT and what I have learnt at Pain clinic,understanding Biopsychosocial model, active relaxation and passive relaxation.fully understanding your pain and acceptance that this is how you are. It does take some time but once it all clicks in your brain and you get it and understand it all, it does help you cope and deal with it all.a bit better, I been in constant pain for years abt. 23 years, and only just started to get to grips over it all in the past 7-8 years. Bio is your physiological-physical pain psychological -thoughts/emotions involved and social- impact that chronic pain has on your social and financial situation ie benefits family, relationships with others and no longer doing activities and hobbies, these are all interlinked with each one having an impact on the next.So you need to look at all these issues in order to get the best outcome in helping to manage your pain and improve your quality of life.the struggle is the physical part can limit your improvement and thats where psychologists, physio and Occupational therapists step in. I hope you you get what I am saying as it is a lot to take in especially when in extreme pain, its basically retraining your brain. hope this helps somewhat , Take care and best wishes, Lee

    in reply to: CBD Oil #48001
    Lc
    Participant

    Hi Spursboy, I have nerve pain and tried a friends one which was over a 1000mg strength which works for her but she doesn’t have nerve pain.and got some, did nothing for me, I agree with Helen don’t waste your money, and hope you find some relief soon. with my break through nerve pain I tend to use a TENS which masks it quite well when on.
    Take care and best wishes Lee

    in reply to: Is it just back pain? #47962
    Lc
    Participant

    Hi northwest, SIJ is sharp, stabbing sometimes feels tingly, and as if your legs are about to give way from under you,sometimes it just feels like a bad burning ache, but mostly sharp, stabbing.and as described above in my last post.also can mimic a herniated disk.
    Your mind can run away from you,as minds are always on the go flipping from one thing to another,thats what minds do, especially if you dont have diagnosis of your ailments, but remember your thoughts are not facts. also it can sometimes seem forever when trying to diagnose unexplained pain. as they got to go through an elimination process,if your GP runs out of things it could be, you could ask to get referred to a pain clinic, which opens a lot of new doors, from diagnosis to management, and therapy meds and alternative therapy. Hope you find out what is causing your pain soon ,let us know how you get on, Take care and best wishes,Lee

    in reply to: Is it just back pain? #47960
    Lc
    Participant

    Hi northwest, we cannot diagnose your symptoms as we are not GP’s and as I suffer SIJ problems (sacroiliac joint) which sounds like what your describing as all other tests have come back clear. which is pain to one side of lower back and can radiate around top of pelvis and from one side of lower back and straight through to front of pelvic area. also it can sometimes cause pain that effects putting weight on that side ie walking standing on one leg. it can also cause nerve irritation on the effected side. Anyway I hope you get a proper diagnosis soon as to what it actually is. let us know the outcome . take care and best wishes. Lee

    in reply to: mindful self compassion #47958
    Lc
    Participant

    Hi Helen, The Kirsten Neff is really simple, even when your in extreme pain both are Good its what you find easiest, take care and best wishes, and hope you are as well as can be. Lee

    in reply to: mindful self compassion #47955
    Lc
    Participant

    Hi Jan, Thank you for posting about Linda Hall, Much appreciated, Hope you are keeping well. Take care and best wishes, Lee

    in reply to: Oramorph Stopping #47948
    Lc
    Participant

    Hi Hope, Brilliant news,Glad you got it sorted, Take care and best wishes, Lee

    in reply to: Oramorph Stopping #47945
    Lc
    Participant

    hi Hope Forgot , along with lower dose medication that you can cope with and alternative ways you should be in a better place mentally, nothing takes pain completely away it’s a case of least meds
    along with other strategies to cope /deal with the pain as best as you can and the use of all sorts of aids to help you manage life better.

    in reply to: Oramorph Stopping #47944
    Lc
    Participant

    Hi Hope, Morphine is a horrible drug to come off, maybe they can give you a step down like Tramadol or something, if they don’t want to sign for it then.That is bad management at your GP surgery I would make a complaint to the surgery manager about what has gone on and the withdrawal symptoms you have had which can be horrendous for some people.make sure it is written letter . if that was me I would go to A+E and tell them what is happening and that you feel unsafe and at risk and need help because of what your GP surgery has done to you.by suddenly stopping the morphine that you was trying to come off.and the withdrawal symptoms your having because it was suddenly stopped. they should sort you out pretty quick. and try and get the DR or consultant you see, to write a letter to GP.about what has gone on.
    Then maybe try and get back to the Pain clinic as an urgent referral to get proper help in a review of medication. Well This is what I would do. and hope you get sorted soon. you would function better once off of oramorph and look at alternative ways to cope with your pain through pain clinic. Take care and best wishes, Lee

    in reply to: Oramorph Stopping #47942
    Lc
    Participant

    Hi Hope, firstly you need to ring your Gp and that you were doing a slow withdrawal and find out why they have suddenly stopped it, and the effects it is having on you, physically and mentally.. if no luck with them, Go to A+E and explain your situation, or contact the consultant/secretary that prescribed it to you. It could be just an error that GP has stopped it, you won’t know till you try. but this type of drug should not be suddenly stopped unless you were in hospital under supervision. Let us know how you get on. Take care and best wishes, Lee

    in reply to: Duloxetine for pain relief. #47941
    Lc
    Participant

    Hi Spursboy, I totally agree with Raphael, you need more help which you should get with every thing at Pain clinic. But sadly most is done by telephone consultations and printed leaflets of workshops that you respond back to them. specifically built around you as an individual and your needs ect. take care and best wishes, Lee

    in reply to: At my wits’ end with back pain #47934
    Lc
    Participant

    Hi, Sorry forgot to mention, within the pain clinic they would have referrals to chiropractors anyway, if they think it would be beneficial to you. and also there is a simple test to check if it is your SI Joint playing up. take care and best wishes, Lee

    in reply to: At my wits’ end with back pain #47933
    Lc
    Participant

    Hi Orenoko, AS Helen says try and get your GP to refer you to a pain clinic, as you they will try and find out exactly what is wrong, also you will have more access to other areas of help you need, like physio and therapy by the pain team because in long term pain it is not just the pain ,it effects your mental well being and the way you deal and cope with things to. they can advise what you need better.GP’s do have a wide range of knowledge but not pin pointed to long term pain and just tend tp prescribed medication to help, constant pain is more than that, and can be complicated, and its’ more than just medication.also be careful of chiropractors as some, its just about the noise of crunching bones. and do more help than good, if your going to use them check them out fully, and that they are registered. Take care and best wishes, Lee

Viewing 15 posts - 1 through 15 (of 1,018 total)