Lc

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  • in reply to: Duloxetine for pain relief. #47909
    Lc
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    Hi Spursboy, the trouble with chronic persistent pain is. there is two types, nerve pain and musculoskeletal pain,I take it you have both,but nerve pain with what your taken .and there is numerous drugs, it is finding the right one for you to control the nerve pain as best as possible.it is a fine balance meds and side effects, so you can still function, I can only take Amitryptyline as the rest I have adverse reactions or did not work,or could not tolerate. I still get some break through nerve pain now and then, so just up it by 10mg for a week or so until I get over the worse of it, then come back down to my normal dose, and also use a Tens more, during this time which helps mask the pain.rather than keep upping the drugs. the other types of pain I only use naproxen and cocodamol but keep to a minimum as I can so when I need it I just max out on it,It does not take my pain away but helps a little, to get me over the worse,(No amount or how strong they are will not take the pain completely away). then come back down again to my min. the trouble with opiates is your body get used to it over the years, you find you end up taking stronger and stronger stuff till you cant function properly or end up addicted. this is why after the years I have been like the way I am come off all the strong stuff and kept to a minimum that I can deal with ,then just use them to a maximum doses, to get over the flare ups, and use all the things I have learnt for coping and alternative methods to deal and cope ect, chronic pain is complicated, and involves many aspects other than physical pain. This is why the majority of GP’s don’t get it and just dish out pills, you need different specialists to help you like you get through, with a good pain clinic. as you are finding out you take one med and need something else because it causes side effects , till you end up rattling like a smartie tube. anyway I hope that you find this is the drug for you and it lowers your pain so you can cope a bit better.let us know how you get on. take care and best wishes, Lee

    Lc
    Participant

    Hi Emma,Helen as thought of another reason it might be. I would not know. As you have been like this for many years ,just lay your cards on the table with GP and say that you have heard of pain clinic and as you cannot really keep my pain under control with no actual diagnosis, and you feel that it would be best for some sort of in depth investigation as to why all this is happening and to get pain under some control could you please refer me to a pain clinic. If your GP says No. then ask why not. and dont let them fob you off. and just say you want some sort of investigation into why I get all this pain, to get some understand as to why, so you can get the help needed to control all this better. and think that pain clinic could help me better, than the last 7 years. and feel like you have had not much help.
    You could find your nearest pain clinic by searching the web and get their number and try giving them a ring directly and tell them your situation and see if you can get a consultation with them, but they may say you need to go through GP tell them you have tried but they wont refer you. But If this is the case just keep badgering GP for the help. As pain clinics can do more than what a GP does and get you to pain management CBT, psycho therapy,medication reviews. what ever you need to help you cope and deal with your situation.
    take care and best wishes, Lee

    in reply to: Feeling desperate #47883
    Lc
    Participant

    Hi Aurora, That’s ok doing your own version of relaxation. I do the same. but at first used a guided relaxations/meditation/visualization methods and still use them occasionally when in sever pain, but generally can manage without, and by myself.I tend to mix all 3 together, but it does take practice , a lot of it. I hope you get the relief you need soon but in the meantime just need to find things that help you deal and cope with what is happening in the here and now. which is how I live not to worry about the past, thats been done and move on from it, and not to worry about the future as we dont know, your only surmising and sometimes that is not the truth ,about things. but here and now is what is happening and your feeling at this moment in time. as each moment of time is different,and pain levels differ to. it’s about coping and dealing with things now, that keeps you going as the saying goes with pain comes strength. and over time you will realize how strong each of us are.Hang in there and hope you get your pain relief soon. take care and best wishes,Lee

    Lc
    Participant

    Hi Emma, welcome to this site, there is also lot of info,at the top of this page highlighted in blue have a look under pain relief and resources. also would recommend you get yourself under a Pain Clinic, as they would be able to help further in your diagnosis and get your pain under more control ,than a GP can. Just ask your GP if they could refer you to a Pain clinic. it is hard to live with pain and even more so when there is no actual diagnosis, which can play havoc with your way of thinking and emotions. over the 23+ years I have been suffering and been going round in circles through the system. have learnt to use all the tools through pain clinic /management CBT and mindfulness and alternative methods ect ect. have learnt to stop chasing rainbows and except that this is how I am and cope and deal with it as best I can. and with the intense therapy I had about 7 years ago learnt to let go and live in the here and now without judgement within myself and others, in a be kind to yourself way. That doesn’t mean you should stop fighting, to find what your problem is , as with a diagnosis it helps you find the right treatment with medication and other methods to be able to deal with it all better. take care for now and best wishes ,Lee

    in reply to: Feeling desperate #47875
    Lc
    Participant

    Hi Aurora, stenosis is the narrowing of the holes in the spine which your nerves pass through,and can aggravate the nerves. so as you have not got pain down your legs.then they obviously dont think it is severe enough, even if you think it is, In my experience true prolapse disks if bad enough do not go back on there own, regardless of how much physio exercises you do. so maybe he is worried about other health issues you have. the only thing then is to keep badgering until you get the injections if they seem to work well for you. but with the way things are at the moment with covid 19 it could be a bit of a wait I’m afraid. like myself I’m getting virtual consultations with pain clinic. at mo, as I have other health issues and they are reluctant to see me in person at this present time but hopefully see them soon.I understand how you feel by being let down and upset at moment which is very understandable. Do you do mindfulness meditation ,and relaxation and try other alternative methods to cope, as this helps me. I have been told by my pain clinic which is linked to st. thomas and Guys in london. that no medication will relieve me of pain and the only thing that will, is to be anesthetized from waist down which they wont do unless i was already paralyzed with no bowel /bladder control, and it would be un ethical to do that to me. so I just have to except that this is how I am and cope the best way I can, with everything I’ve learnt over the 23+ years living with pain. The hardest part is accepting ,dealing and coping with yourself. Maybe as things get a bit more relaxed with all thats going on with covid19 they might re assess you again in the near future if you ask and badger them. in the meantime keep in touch with this site we are all here to support each other , any questions about anything, just ask . I hope you find new alternative ways to help yourself through this difficult time, take care and best wishes, Lee

    in reply to: Feeling desperate #47873
    Lc
    Participant

    Hi Aurora, that is what pain does slowly nibbles away at you,then with added health conditions on top just makes it all feel worse. that’s why you got to work on a strong mental attitude. to keep fighting, at the end of the day just need to ask the question to yourself can I keep living in this state of pain or do something about it to make it a bit better.I found injections were short lived then didn’t work . anyway Good luck take care and best wishes,Lee

    in reply to: Newsletter #47871
    Lc
    Participant

    Hi Jan Thanks for this , it is a great reminder of how to cope. hope you are keeping well as can be. Take care and best wishes, Lee

    in reply to: Feeling desperate #47870
    Lc
    Participant

    Hi Aurora, sorry to hear your in so much pain, but as Joyce says this sounds as though the only thing left and to help is surgery, this state of pain will and does cause you depression and makes you the way you feel. have a chat with your neurosurgeon tomorrow and explain to him how you are and feel, and that no matter how much drugs you have it is not working and want and need something done to take the pain away ASAP. before you do something stupid, even if your not at that point, hopefully this will get them to act. lay it on worse than you already are not that you can get much worse. Let us know how you get on tomorrow after your talk with neuro surgeon. in the mean time try and keep your mind active by distraction methods like coloring pages or starting family tree, listen to your favorite music ect. things that you can do while laying in bed.I know this is harder than said but try to calm yourself and relax as best you can. let us know how you get on tomorrow , take care and best wishes, Lee

    in reply to: Flare up in Chronic pain. Symptoms #47864
    Lc
    Participant

    Hi Caroline, Glad the Tens is another tool you can use which helps you, The difficult part is finding your baseline and pacing,you base line is any activity you can do now without causing a flare up, baselines can improve over time and this is not what you used to able to do, or what you think you should be able to do. there is a big difference in what we want to be able to do and what we think we can do and what we can actually do. this is why people have frequent flare ups.Pacing is about spending enough time on an activity without causing a flare up, you need to listen to your body as this can change daily depending on how much pain your in and feeling each time you do something.the aim is to achieve and maintain a fairly even level of activity despite varying pain levels. I found that at times like this, you might need to write it down on what you can do when like this, even if it is just 2 steps and use this as base line. it hurts to try things I know, as long as it doesn’t make pain worse than it is already, and slowly build up from your base line each time. you may find that it may flare up again, don’t panic, just go back to the beginning baseline and start again, It is not a failure. and is mentally and physically tiring.This is not what we want to get into if possible that roller-coaster and circling. just use all the tools you know to help you get through it. like Tens ,meditation/relaxation /visualization, distraction methods what ever helps you as an individual. It may seem as though your going round in circles on a roller coaster ride,you need to try and break that cycle. It is hard and very difficult I know. With chronic pain the majority of the time the injury is healed or it may be caused by something else, and our brain signals go faulty.It is a case of trying to correct this. although it is not always possible as it is so complicated and like myself just learn to except that this is how I am now and deal and cope the best I can. Hope this gives you a little more in depth of how baselines and pacing works Take care and best wishes, Lee

    in reply to: Flare up in Chronic pain. Symptoms #47861
    Lc
    Participant

    Hi Caroline, I totally empathize with you and understand the feelings you have. it can feel like that at times and can take quite a while to settle down, but if you feel that it is getting worse and not settling maybe give your GP or pain clinic consultant a ring to let them know,how you are and feel they could maybe help a bit or to put your mind at ease. But one thing is sure your not alone on this site and most of us have been through this at times. also sometimes even gentle stretches can aggravate nerves ect, and need to stop everything for a few days just sit, walk to toilet shower. thats it, if at all possible. to see if that helps settle it down a bit. try a Tens ,it helps me get through bad times like this, well masks the pain a bit.Hope it settles soon and your in less pain, but like I said if not then ring GP or pain consultant to see what they say. Take care and best wishes,Lee

    in reply to: Flare up in Chronic pain. Symptoms #47846
    Lc
    Participant

    Hi Carolina, I have suffered depression and PTSD, when doing mindfulness this is the part that I focus on, ask yourself questions,and re-enact the situation if it’s bothering you. I found that over time my mind through mindfulness had sorted it out to a point of I was happy and excepted what went on, and know stopped waking up within my dream of it, It did take time and at first wasn’t happy facing it, but in the end by facing it all in a calm and rational matter had dealt with it all and now happy within myself of how I dealt with it and accepted it all. personally I think you need to do this to move on from it, and let go.Hope all this that Jan, Helen and I have posted helps you in some way,Take care and best wishes, Lee

    in reply to: Flare up in Chronic pain. Symptoms #47842
    Lc
    Participant

    Hi Carolina, what I have said above is difficult that is why I practice CBT mindfulness technics which help me to calm and stop mind racing, but it does take a lot of practice daily and takes time to master it. I have been doing it a few years now and it does work. as you know the mind does rush around and flip from one thing to another, that is what minds do. it’s a case of finding something that helps you calm it, like for me mindfulness/relaxation and visualisation technics help me. Take care and best wishes,JUst keep practicing and you will get it all one day. Lee

    in reply to: Tumeric for back pain #47840
    Lc
    Participant

    Hi Spursboy, I use all these ingredients but not mixed together never tried it, but using all these in food ect, I have not noticed any difference , just give it a try ,if it works for you, then great.No harm in trying is there.Let us know if it works but would have thought you would have to use it for some time over a period of 3-6 months before you notice anything. take care and best wishes, Lee

    in reply to: Flare up in Chronic pain. Symptoms #47839
    Lc
    Participant

    Hi Carolina, Welcome to this site. As already said flare ups are a pain and has negative effects on activity levels ect. but it’s a case of knowing your baseline and improving your pacing technics . it is hard I’ve been in pain for 23+ years and still struggle at times. it is biopsychosocial, basically bio -physiological your physical pain,muscle weakness flexibility ect. psycho – thoughts and emotions involved -anger, frustration, stress guilt ect, ect, then social impact that chronic pain has on your social and financial situation family relationships with others ,work issues and such like, these are all interlinked with each other and having an impact on the next. that is why chronic pain is so hard to deal and cope with but with much practice with things that help you cope like meds and alternative methods Tens, machine art and craft, things that distract, are all help to help you cope and deal with it all ,I understand it is complex and varies from one person to another but we all must find the best methods and meds and alternative medicine to help us best as and individual,anyway take care for now and best wishes, to finding things that help you cope. Lee

    Lc
    Participant

    Hi Rosa, Oh dear, I do feel for you and you have my sympathy your are dealing with so much at the moment, Your Dr would have told you how many patches to wear and for how long, using more and for longer could have serious side effects.I think it might be a case of where is your most pain area and putting the patch there. while having infusions they can monitor you while in hospital. Personally I don’t have fibro or ME, but do understand and live with Chronic persistent pain, nerve damage/pain SIJ Pain, arthritis amongst other ailments. and like you tried most things over the 23+ years.
    My GP wanted me out of pain and referred me back to pain clinic this year and already had a consultation after they looked at my records and said the only thing that would get me out of my pain is to anesthetize me from waist down but would not do it as I would be permanently paralyzed form waist down with no bladder or bowel control, If I was already like that, then they would consider it. so basically I have to live with it. I use a Tens machine which helps mask the nerve pain on top of amitriptyline which is the only thing I can take, along with the minimum of pain meds as I dont want to be zombified. other drugs and injections/ ablations ect either dont work or short lived. also use the tools I have learnt through mindfulness, CBT, pain management and do a mixture of all these things meditation/relaxation/visualization technics. I hope your pain resides a bit soon to give you some sort of relief. take care and best wishes . Lee

Viewing 15 posts - 1 through 15 (of 1,000 total)