kev76

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Viewing 15 posts - 16 through 30 (of 33 total)
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  • kev76
    Participant

    Hi Lee,Good to hear from u again.About my new flat my support worker is sorting it all out for me so hopefully I won’t need to get the mp on board I just hope it all happens soon as I’m struggling on my crutches and need a electric wheelchair.I do try and do stretches but I’m always in so much pain it’s hard to do.Since joining this site it has started to make me think differently about my pain which can only be a positive thing.Take care Kevin.

    kev76
    Participant

    Hi Lee,I had my assessment today the Ot said I’m going to have to move to another flat as my flat is to small for a electric wheel chair and they can’t put a ramp outside as there isn’t a enough room.Also I have managed to bring my appointment with the pain clinic forward which I am really happy about.My pain luckily has calmed down a lot and I don’t feel so stressed now.Take care Kevin.

    kev76
    Participant

    Hi Lee,Thank you for your advice I already speak to the Samaritans every week but I will start ringing the pain clinic every hour if that’s what it takes to been seen quicker.As for A+E I’ve been many times and sat in here for many hours each time but they never do anything.Tommorow is another day and I can assure u I will ring them all multiple times until I get a plan sorted.I don’t no if anything will become of it but I saw my local mp last week and told him everything about my health the dangerous levels of medication I take and what it is doing to my health and I mentioned that I wanted to try cbd oil.He has promised me that he will look into things for me and get back to me and also said that he would be happy to give me home visits due to my poor health.I will keep you updated with my assessment tomorrow.Take care Kevin.

    kev76
    Participant

    Hi AnnieD,Thank you so much for your kind words I appreciate it very much and I will try and focus on my breath.When I get these terrible flare ups I find it extremely difficult to relax and stay calm then I end up completely stressed and exhausted.I will try hard and take yours and lee’s great advice and se how I go.Take care Kevin.

    kev76
    Participant

    Hi,Lee I have called an ambulance many times over the years all they do is give me yet more morphine into my arm and then send me home again.I am waiting for another appointment with the pain clinic just don’t no when I have told them many times that I will take a cancellation but haven’t heard anything back.Why is life so cruel!Take care Kevin.

    kev76
    Participant

    Hi Lee,Thanks for getting back to me.I haven’t been this bad in a while I really am struggling even to move around I can’t even stand up I’m having to drag myself onto my chair.Regarding medication I already where 2 butrans patches that I replace every 7 days I’m using suppositories,Muscle relaxers,Amitriptyline and the list goes on.Nothing seems to work anymore!I do use a heat mat myself I also have a full length spinal hot water bottle but like I said nothing is working at all.Im exhausted and extremely down as u no when pain is this bad u do not no what to do with yourself.Best wishes Kevin.

    kev76
    Participant

    Hi,Lee,I was wondering if u or anyone else have got any ideas to reduce my pain as I have had an extreme flare up and unable to stand up I’m crawling around my flat in agony and really stressed.This is the reason why I’m having the Assesment on Monday to get some sort of wheel chair as I now struggle to stand up due to the high levels of pain.Any advice from anyone would be appreciated.Take care Kevin.

    kev76
    Participant

    Hi Helen,Thanks for your reply I will look into the gel covers for seating and thank you for wishing me well with my Assesment on Monday.Take care Kevin.

    kev76
    Participant

    Hi Lee,Thanks again for your advice and input that sounds great.I just want this Assesment over with so I can get things in place to make things easier for me.I will let u no how the Assesment goes on Monday.All your advice is much appreciated.Take care Kevin

    kev76
    Participant

    Hi Lee,That all sounds great I would want to use it indoors and outdoors if possible I just don’t no what make model to go for?I spoke to a company on the phone called Live well and one of there models what folds up so u can not only use it indoors u can also put it into a car etc.They told me my only problem is that as I am 6 foot 3 tall I would be to tall for a lot of electric wheel chairs?I have someone coming on Monday to give me my wheel chair Assesment I just don’t really no where to start with it all or what I am intitled to?Many thanks again Kevin.

    kev76
    Participant

    Hi Lee,I did message u back but I’m unsure if u received my message as I can’t se it.I asked u if u could possibly recommend a electric wheel chair for me the trouble I have is my pain is in my whole spine and also in my left hip so the wheel chair needs to be comfortable for me.Take care Kevin.

    kev76
    Participant

    Hi Lee,That’s good to hear that u think I am on the right track.The problem I have is my pain is the whole spine and also my left hip.Could u possibly recommend any decent electric wheel chairs that would be comfortable for me?Many thanks Kevin.

    kev76
    Participant

    Hello Lee,That all sounds great but the trouble I have is I can now hardly stand up due to the pain so I hardly leave my flat.I am actually waiting for a wheel chair Assesment so I can get back some of my independence then I could do the course no problem.My mobility is terrible now so even trying to do the simplest of things is very difficult for me.Hope fully once I have a wheel chair it will transform my life.Take care Kevin.

    kev76
    Participant

    Hi Lee,Thanks again for all your lovely advice I do appreciate it.I am so happy to have found this site as I was and still am in a dark place.Its great that I have finally found other people who who totally understand what I am going through on a daily basis.I definitely will try some of the things that u have recommended to me like meditation and relaxation as I am permanently stressed with it all!I just hope in the future I can come to terms fully with things and that I can somehow get my pain under control.Many thanks Kevin.

    kev76
    Participant

    Hi Lee,I’m glad u have mentioned that as I haven’t fully come to terms with things.Hopefully now I have found this site it will help me cope with things a lot better.Could u possibly recommend anything else on this site.Thanks Kevin.

Viewing 15 posts - 16 through 30 (of 33 total)