Jan Sadler

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  • in reply to: Shingles pain #47973
    Jan Sadler
    Keymaster

    Hi Christina,
    I cam empathise with you, shingles is extraordinaily painful. I used an icepack and calamine lotion on mine. I remember I got up about five t imes in the night to do this. It did quieten it down for a while so I could get a bit of sleep.

    I hope other members come along with some more ideas for you.

    I hope it soon settles down and you become more comfortable again.
    Let us know how you get on.
    Goog luck and all best wishes for a speedy recovery.

    Jan at PainSupport

    in reply to: Is it just back pain? #47963
    Jan Sadler
    Keymaster

    In my case,and many others, a burning pain is caused by nerves being compressed in the lower back. You could tell your doctor you are worried it’s nerve pain and ask for an MRI scan. There are various other tests for nerve pain too.

    Here’s a download of a diagnosis checklist. You could print off and fill in before you see your doctor:
    https://painsupport.co.uk/wp-content/uploads/2014/11/diagnosistipsandchecklist.pdf

    Also read this page for more information on getting the best out of medical consultations:

    Getting the Best Out of Medical Consultations

    Good luck and let us know how you get on.

    Jan at PainSupport

    Getting the Best Out of Medical Consultations

    in reply to: mindful self compassion #47954
    Jan Sadler
    Keymaster

    Lee, Thanks for posting about Kirsten Neff.

    I can also strongly recommend the work by Linda Hall. She is easy to listen to and very comforting, calming and wise.

    She has two websites:

    Home – Linda Hall

    https://www.lindahallmeditation.com/

    A good page to start at:

    Relaxation & Self Help Audio

    Jan at PainSupport

    Jan Sadler
    Keymaster

    I’ve just received this message from Dr Lin Yu regarding his survey on chronic pain and Covid-19:

    “I would like to let you know that we have closed the survey today, and I’m very happy to tell you that we received a lot of responses. I would like to thank you for your support and the wonderful people on Pain Support who kindly shared their experiences with us.”

    Verey many thanks to everyone who took part in this survey.

    This post will be removed shortly.

    Jan at PainSupport

    Jan Sadler
    Keymaster

    Hi Emma

    There are two pages on my website that may give you more information and advice and also a ‘Diagnosis Check List’, link to it here:
    https://painsupport.co.uk/wp-content/uploads/2014/11/diagnosistipsandchecklist.pdf

    Pain Clinics and Pain Management Programmes

    Getting the Best Out of Medical Consultations

    in reply to: Flare up in Chronic pain. Symptoms #47844
    Jan Sadler
    Keymaster

    Mindfulness is just that, being mindful, being aware.

    We often use the breath as an anchor to focus upon, but it could be anything else, perhaps a part of your body or a candle flame.

    Here’s a short paragraph from my page on Mindfulness, link further below:

    If it’s your breath you’re following, just follow your breath as it flows in and out.
    When your attention wanders, which it will, bring it back to your breath, without fussing about it.
    Do this over and over again.
    Meditation is about letting go, so just observe the thoughts and let them go.
    All you are seeking to control is your attention, your attention to your breath.
    Don’t be judgemental, have an attitude of “let’s see what happens”.

    More information here:

    Meditation

    in reply to: Flare up in Chronic pain. Symptoms #47836
    Jan Sadler
    Keymaster

    Hi Caroline

    I expect you have already read our page about flare-ups on my PainSupport website, but if not, there is a link to it further below.

    Keeping a log on pain and activity/feelings is a great help to keep track of your pain. There are some logs to download towards the end of the same page below.

    Flare-Up Plan

    Good luck and keep in touch.

    Jan at PainSupport 🙂

    in reply to: Newcomer introduction #47678
    Jan Sadler
    Keymaster

    Welcome to our forum David. I’ve written to you separately with details of our website and various pages of interest in managing pain.

    I had a whiplash accident many years ago and, like you, tried everything available. I then decided to take things into my own hands and bought a TENs machine. It was a basic machine but these days you can buy more sophisticated devices, but the basic ones do the job OK. Most offer a return of money if the machine doesn’t help, so look out for that.

    I also learnt relaxation and breathing methods which most definitely helped. Lessons in the Alexander Technique was also a wonderful help as the focus is partly in keeping your neck free of strain and stress. These days the neck pain has gone, only recurring occasionally if I hold myself for a while in a particular position.

    If you do a Forum Search for TENS you will bring up a lot of previous forum entries all about TENS.

    Good luck, keep in touch and let us know how you get on.

    Jan at PainSupport

    in reply to: How are you spending Easter? #47634
    Jan Sadler
    Keymaster

    Ditto, Laura! Nightmare, isn’t it!

    Stay well everyone, keep safe.

    Jan at PainSupport

    in reply to: Covid 19 #47607
    Jan Sadler
    Keymaster

    Thank you, Lee, for posting this. As you say, it’s a strange old time right now. It’s a new situation for everyone and I guess we’re all feeling and thinking in much the same way about it. So you are not alone.

    I’m taking one day at a time and trying to not think and worry about what is ahead. To help with this I concentrate more than ever on what I can/need to do to keep my spirits up.

    Gentle exercise is even more important now, so do move in whatever way is appropriate for your condition. Concentrate on enjoyable things to do: art, craft, music, radio, TV, gardening, reading etc. at a level you can achieve.

    Visit our ‘Laughter is the Best Medicine’ thread:
    We have thousands of the best jokes around – all clean!
    https://painsupport.co.uk/forums/topic/23805/’

    For even more jokes, do a search for ‘Laughter is the Best Medicine’ on our site.

    Stay safe, keep moving and keep smiling 🙂

    Jan at PainSupport

    in reply to: unable to sit #47570
    Jan Sadler
    Keymaster

    Sitting pain is a big invisible issue for many of us. People just don’t understand how it can be painful to sit.

    I split my days into small blocks of different activities, eg, a little lying down, a little sitting, standing, walking, exerecises. Repeat! Again and again throughout the day, doing what I can. This is called Pacing, there’s a whole section on it under Pain Relief in the menu. Do read it!

    I am obliged to point out that marijuana/cannabis is still illegal in this country. Products containing CBD (Cannabidiol) are generally available. CBD doesn’t contain the illegal part of the cannabis plant that gives you a high. However, I and others on here have tried a CBD tincture without any success.

    Jan at PainSupport

    in reply to: Continuous Electric Heating Pads #47559
    Jan Sadler
    Keymaster

    Please note, the items mentioned above are on the American Amazon website.

    There are similar items on the UK Amazon website, and, I expect, on other websites too if you do a search for them.

    Jan at PainSupport

    in reply to: Spinal cord stimulator – questions #47540
    Jan Sadler
    Keymaster

    Hi AVK
    I don’t have a spinal cord stimulator but I do have tinnitus, had it for years and have learnt to ignore it. Like many things, it’s worse if you focus on it.

    In case you haven’t seen it there is some information here about SCS and tinnitus:
    https://www.ncbi.nlm.nih.gov/pubmed/31186971

    And more information from the NHS about tinnitus here:
    https://www.nhs.uk/conditions/tinnitus/

    There are also some support forums specifically for tinnitus, but bear in mind you will be reading a lot about ‘worse case scenario’ on forums.

    I hope the SCS is working for your pain.

    We wish you well – and let us know how you get on.

    Jan at PainSupport

    in reply to: Pain after facet joints denervation. #47504
    Jan Sadler
    Keymaster

    Hi Keri,

    Welcome to our Forum, and don’t worry, you are doing everything exactly right!

    Sorry to hear about your situation and I hope you get some relief very soon. Try to stay calm, it’s still early days. Relaxation techniques can help with the pain and with keeping calm. There are plenty of relaxation tracks available on the internet for free or from my Shop on this site.

    I haven’t had this operation myself and so I hope someone else comes along soon who can give you more information.

    Meanwhile, you could explore the Pain Relief section on this site, you find it in the main menu.

    Take care, keep in touch.

    Jan at PainSupport

    in reply to: Newbee #47441
    Jan Sadler
    Keymaster

    Sorry, I meant MS Society.
    https://www.mssociety.org.uk/about-ms/treatments-and-therapies/cannabis

    Jan at PainSupport

Viewing 15 posts - 1 through 15 (of 1,149 total)