Spinal cord stimulator – questions

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This topic contains 52 replies, has 8 voices, and was last updated by  SharonH10 2 weeks, 2 days ago.

Viewing 8 posts - 46 through 53 (of 53 total)
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  • #46554

    Sarah
    Participant

    Hi SCS people
    I am now 5 months since permanent implant. Still hardly any pain relief, but I can push the pain around with different settings. Switching it off makes me realise it must be doing something!
    Have about another 2 month wait for surgery to move the battery. This has been stabbing into my hip since the initial swelling went down. Surgeon recently agreed it is in a bad position. Turned about 45° and very close to skin surface.
    Sitting is very painful, so still having to spend many hours lying down. Walking very difficult.

    #46557

    SharonH10
    Participant

    Hi Paul

    Bless you, so pleased you’re getting relief now. It really takes it out of you. I’ve been having back surgeries for 10 years. Now have nerve damage and cant feel bottom of my left leg. They cant fix that but I’m just hoping to reduce the pain. Once I have the main implant I may ask about those pills. I was never offered those. My pain consultant didnt agree with giving me meds, just wanted to keep giving me nerve block injections etc, which never worked.

    Sweeping mode sounds interesting. Where is your pain? Mine is back,coccyx, pelvis and legs.

    The pics have really helped explain thank you.

    Think I’m changing programmes again today. Worried I’ll end up with another bad day. Yes is was like the the muscles were in spasm.

    Have an appointment to see consultant and nevro guy tommorow in London. I’m scared about the main OP. Which is silly as I’ve had plenty of ops. Maybe it’s that I’m scared it wont work.

    • This reply was modified 3 weeks, 1 day ago by  Moderator2. Reason: I've edited out the surgeon's name. It's just in case someone recognises him/her self, however unlikely! Hope you can get some more relief for your pain
    #46559

    SharonH10
    Participant

    Hi forgot to ask,

    For the main implant surgery did you stay overnight? Also were you given heavy sedation or general

    They keep giving me conflicting advice!

    Having a slightly better day today. Although a little tearful.

    #46560

    SharonH10
    Participant

    Hi Sarah

    I’m so sorry you’ve not had much pain relief. I really hope moving the battery helps you get more comfortable. Is there nothing else they can do to help??

    Sharon

    #46561

    Sarah
    Participant

    Hi Sharon. The perm implant was under GA. 1st down to theatre. Home tea time the same day. No switch on for a week, back to previous level of pain. I was on no meds for pain relief as side effects were too bad. The trial was really effective for me. The perm has not been any way as good yet.. back to pain clinic next Thurs to reset again.

    #46562

    PaulT_99
    Participant

    Hi Sharon,

    Both of mine back in November last year @ Guys were both “Sedation”.
    I raised concerns about this, as my previous 8 Operations for other things (yes 8), have all been Generals.

    The guy said dont worry you wont know about a thing, or remember anything. He said if there was any concern he would immediately change to a General.
    So i took his word, and sure enough, i layed down on the table chatting to the nurses, and bamn was gone. Next thing woke up in the recovery room.

    Both the Trial and the Full, i had the op about 11am, and was on my way home by 4pm the same day.
    Edit…. Mine was configured and turned on the same day before i went home.

    • This reply was modified 3 weeks, 1 day ago by  PaulT_99. Reason: forgot something
    #46564

    PaulT_99
    Participant

    Hi Sarah,

    I know what you mean by the battery being painful when sitting. I still get that some days.
    I noticed when in my car, when i had the heated seats on medium it really helped.

    So following that, i got an electric heating pad from Argos. Think it was 20 quid. I now have that on the sofa behind my back / bum. Its lovely !.

    #46574

    SharonH10
    Participant

    Hi everyone. All I can say is OUCH!!!
    Had my OP yesterday. Was very sick after but still came home same day. Worst train journey ever! I was in tears. Haven’t slept much due to pain. As with yours Paul, my unit was switched on before I left.

    Wanted to thank you again for your support. Your advice means I knew what to expect. Always good to be one step ahead.

    I was in theatre for 2 hours, then 2 hour recovery. Do you know how long you were in for?

    Standing and sitting are so painful. I will be laying down for a while that’s for sure.

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