Sciatica and Back problems getting me down

Home Forums General Sciatica and Back problems getting me down

This topic contains 9 replies, has 5 voices, and was last updated by  AnnieD 1 week, 1 day ago.

Viewing 10 posts - 1 through 10 (of 10 total)
  • Author
    Posts
  • #46443

    Othila
    Participant

    Hey to anyone reading. I went into hospital mid Feb with the most severe back spasms and pain I have ever experienced in my life. They basically gave me lots of painkillers and sent me on my way with no support. I have been off work for a while now and back and forth to the GP. Painkillers have been a nightmare. They literally just knocked me out and did nothing for the pain. I got given even stronger medication which again, did nothing. Managed to wean myself off a lot of the meds which left me severely depressed and in even more pain. Back to doctors yesterday and have been given yet another painkiller to try. Have tried to keep as active as I can. This week has been so hard as the weather has been so bad. I pushed myself out today for the most painful walk of my life but thanks to the meds making me slightly spaced out, it helped me at least exercise. How do you cope? Any good strategies out there? I’ve not bee able to work as i cannot sit for more than an hour before being in agony. I have to properly lay down for a bit before trying again. MRI scan/injection is possibly next on the list. I am also paying for private physio as the person I had through my local hospital was the most uncaring, unsympathetic person I have ever met in my life. When we are in pain, we all deserve a bit of care, especially with any illness/condition we cannot see. Tonight is my third session so I hope she can work some magic. Thank you for reading

    #46444

    lc
    Participant

    Hi Othila, Sorry to hear your in so much pain, if you look at top of this page you will see pain relief click on that and you will get information. Firstly I would try to get referred to pain clinic where they would be able to help more than GP. also you are doing one thing right and that is to keep as mobile as possible,and get a proper diagnosis of what exactly is going wrong with you. the trouble with pain is it’s an individual thing of what medication and alternative methods work for you it’s all trial and error as what works for one doesn’t always work for someone else. personally I have nerve pain and can only take amitriptyline any break through and bad days I use a Tens machine which masks a lot of it so i can keep going. also long term pain does come with mental health issues and personally would recommend getting your GP to get some CBT ( cognitive behavioral therapy) and mindfulness very basically it changes the way you think and react to pain and helps you understand and deal with it all. Dr’s and surgeons these days are reluctant until the last resort to have surgery and will try all other methods before hand so yo may have to work your way through the system. You have my empathy along with others on this site,Keep in touch and let us know how you get on . take care and best wishes. Lee

    #46445

    Othila
    Participant

    Thank you Lee. I have had M.E. and Fibromyalgia for 22 years so am no stranger when it comes to pain 🙂 Have been through CBT which in the long term I didn’t find helpful sadly. I am using the Headspace App at the moment which I am loving as I need a lot of distracting when it comes to pain and thoughts (the CBT was great whilst I was actually there but when I left I unfortunately have a mind that likes to fixate and I found the techniques were not helping). My local support for M.E. was terrible and I have pretty much had to go it alone with a lot of it. I did try Amitriptyline but sadly the side effects for me were so bad. As you rightly say, it is hard finding a plan to suit. My problem too is my other pain issues come either in cycles or completely out of the blue. I am totally on board with what you say about mental health too. Non pain sufferers have no idea how it is to deal with chronic pain. I sometimes wish is was a visible thing so people could see what we all deal with day to day. Sending best wishes and I hope today is a low pain day for you

    #46446

    lc
    Participant

    Hi Othila, Thank you for putting me into the picture, I thought you were new to all this only a couple of years or so. I too have suffered chronic persistent pain nerve damage/pain arthritis and SIJoint problems all together now for about 23 years so you like me, must have tried most things, i too use distraction methods through art /leather work and wood carving , also do my family tree,and swimming weekly. as and when I can. as long as you have something that you can manage to keep your mind focused on and that it brings you joy and happiness doing these things then that’s Good. as you probably know there is no magic cure in form of a pill as we all would be taking it. but as time goes on there are different thing coming out.Head space there is a few on here that have tried it or use that method, sounds like your on the right road to finding stuff that works for you. take care and best wishes and hope you to can lower your pain soon. Lee

    #46447

    Helen H
    Participant

    HI Othia
    no magic solutions I am afraid, but I also have ME quite badly, as well as nerve pain, muscle pain and can’t sit for any time…so I do sympathise! AS you would imagine I am familiar with how little support we ME folk get. I also had similar experience with hospital physio…who was unbelievably crap.

    I use heat a lot, which I find helpful. And building up my mental resources with antidepressants and meditation. One day at a time, and pacing are also important.

    I had to nag very hard to get MRI and to see pain clinic. It is hard but you have to keep going back and being a nuisance. As a GP said to me at the time: When a person who doesn’t often come to the Dr comes back again and again with the same complaint, we know it needs sorting.

    Wishing you well. Helen

    #46448

    PaulT_99
    Participant

    ME Sufferer here too. I contracted it back in 1989 after getting viral meningitis.
    Back then there was zero support at all, and it took forever to be diagnosed.

    I have always believed ME amplifies pain, when compared to someone without ME. So the 2 combined is just horrific.
    I also have advanced osteoarthritis, severe small and large nerve damage, 2 artificial hips, and a fused disc. And on top of that diabetes II, edging towards 1 due to my failing pancreas.

    I suffered for 17 years and at one point was going to end it all. As GP’s and hospitals in general are no help what so ever. Its not their fault really as they dont really know how to help.
    The biggest help is getting into a good Pain Clinic. From reading on here there are definitely good and bad pain clinics, so thats a mission in itself. For me i went through a local PC who spent 5 years trying to help me and finally said “Im sending you to London to St. Thomas”. As he had heard about their work at some seminar.

    St. Thomas were and still are absolutely superb. They sat with me while i was sobbing in tears, and even one of the pain clinic nurses started crying too where i was screaming in pain so much. They said they would not stop until they found a way to help me.
    They put me on Tapentadol which is a new specialist nerve pain drug released in 2012, so relatively new. Its brilliant. Its not worked for some, but for me it was magical. I managed to stop all other medication and was only taking the tiny Tapentadol tablets.
    And now as of Nov last year i had the Nevro HF10 Spinal Cord Stimulation implant. The process of getting there of which is no walk in the park i might add. It took 9 months start to finish, but now im 80% pain free.
    I only have a tiny bit of pain, so low for me its not even worth bothering about. I just have to charge my implant every day which takes about 30mins. Then im good to go for another day.

    Talking to others like this forum is a massive help.
    And LC mentioned Mindfullness. When i started my SCS programme they put you on a 2 week residential course at the hospital. You sleep there as the hospital has its own hotel !. A large part of the course is Mindfullness, and tackling the Mental effects of pain. Going through this programme with approx 15 other people in the same situation was wonderful. We all had bad moments, and lots of tears, but i would do it again if they let me.

    #46449

    Othila
    Participant

    Thank you all so much. It is comforting to know I am not alone. I really appreciate the support. I had a good physio session this afternoon and she said that although I am in pain, my movement is improving. My boss has also been very supportive but it is so very hard not to be stressed about being off work. My physio said I am not ready to go back and my Boss was really good about it as I have been off about 3 weeks already. Next week I hope the weather is dry so I can get out in the fresh air. I am lucky to live near the sea so I have a very therapeutic backdrop for my walks. Like many have mentioned, the mental health drain that comes with pain is overwhelming at times. Wishing you all a comfortable evening

    #46450

    AnnieD
    Participant

    Hi Othila – welcome to this forum, and sorry you’ve been having a rough time of late and this place is a godsend for people understanding what you’re going through. I can’t tolerate any medication anymore, and am doing trial and error of natural remedies – in fact I’m about to do a separate post on ylang ylang as it’s antispasmodic. Obviously I do realise what works for one doesn’t work for another person. I agree with you I’ve been suffering more due the recent wet weather rather than due to the cold this year. Oh wow you are so lucky to live near the sea, I do absolutely miss it! Hope you pain levels start reducing soon and take care having woken up to stunning blue skies – best wishes AnnieD

    #46460

    Othila
    Participant

    Thank you Annie. I was lucky to be able to get out today for a short while and have lunch with some friends. This really lifted my spirits. I am finding the Tramadol is helping a little but the main thing is that it isn’t just knocking me out like the cocktail of drugs I received from the hospital which is good as I feel more able to function mentally. I am resting now but will try and do another walk tomorrow. Have a good Sunday all

    #46463

    AnnieD
    Participant

    That’s really great news Othila! Enjoy too! best wishes AnnieD

Viewing 10 posts - 1 through 10 (of 10 total)

You must be logged in to reply to this topic.