Please help. Chronic prostatitis and pelvic pain

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This topic contains 5 replies, has 3 voices, and was last updated by  AnnieD 3 weeks, 1 day ago.

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  • #46546

    Anthony
    Participant

    Hi,

    First of all thank you for your support. I’ve been suffering from chronic prostatitis and chronic pelvic pain as a result of it since 2016.
    I’ve tried everything, even prostate surgery, but nowadays I’m very depressed. I’ve embraced a mindfulness program of 8 weeks by Bydimala Burch and yet I struggle every single day with terrible pain and depression as a consecuence.
    I hope to find someone with the same or similar problem because until now it hasn’t been the case here in my country.
    Whish you all well,

    Anthony

    #46547

    lc
    Participant

    Hi Anthony, sorry I do not have this condition, but I am pleased that you have brought this forward as many men bottle things up. you have my empathy. I do understand the nature of your problem and also know that the chronic pain like other chronic pain whatever the cause is not really understood and many find it difficult to treat.the main thing is to get your pain under control and deal with your mental health as a result. I’m afraid it’s a case of trying different meds and alternative medicine to see what works for you best, as what works for one does not mean that it will work for someone else. mindfulness is a way of life and needs to be practiced regularly.and glad you embraced it. have you tried CBT (cognitive behavioral therapy ) to help you with your depression along with mindfulness it helps me a lot.along with other ways to distract your mind from the pain. If you click on the link above Pain support it will give you a lot of info about alternative ways to help with pain . also would recommend you go back to GP if the pain relief drugs are not giving you sufficient relief. and ask to try something else that they recommend and keep doing it till you found something that gives the best pain relief..also ask about if you can get referred to CBT to help you with depression. Let us know how you get on. also you can always talk on here what ever is bothering you . we are a friendly bunch who understand what living with pain is all about. Keep in touch ,Take care and best wishes,Lee

    #46550

    AnnieD
    Participant

    Hi Anthony welcome! Where in the world are you? Just interested! Replicate what Lee has said, I call him our mindfulness guru. The only one I do is focus on the breath, as I struggle to focus. I have chronic pelvic pain and toilet issues. If you have frequency issues at all, can highly recommend 2000mg pumpkin seed powder, it’s been recommended for prostate issues, but it’s changed my life. Pain gets us alldown, so it’s about finding something that works for you. I’ve found exercises that help strengthen your core very useful for reducing my pelvic pain. You take care and please don’t forget you are so not alone! Take care and best wishes AnnieD

    #46553

    Anthony
    Participant

    Many thanks Lee and Annie.
    I’m from Spain Annie. Here I’ve been treated by a dozen of urologist and other specialists. Now I’m doing pelvic floor physiotherapy with very few results.
    During all this odyssey I’ve tried a great number of drug, pumpkin seeds powder and pills, plants, diets and painkillers, and the only one which attacks the pain for a while is a drug called enamplus here in Spain, it contains tramadol (opioid) an enantyum (antiinflamatory). This drug gives me some very important side effects, and I find myself trapped for I have just two options, having the pill and feel absolutely dizzy, forgetful and so on, or suffer intolerable pain. There’s no other drug capable to calm my suffering, but as a teacher, those side effects are terrible too.

    I was treated by various psycologists too, and to some extent I’m able to understand what they mean when trying to help me, but when pain increases sharply all my stregth just evaporates and I sink again in depression. They prescribed me sertraline and other antidepressants but I sttoped having them for all of them give me undesire side effect in my pelvic muscles. In those moments I can’t find a way out, I feel trapped.
    My GP just feels sorry for me and the only solution for him and the rest of doctors is tramadol.

    Thank you so much, I really appreciate your support, I will check all links tryingto find some mesure of peace.

    Best whishes to you all,
    Anthony

    #46555

    lc
    Participant

    Hi, Anthony , just a Wonder ,have you tried a Tens machine? it helps me cope when nerve pain breaks through,It doesn’t cure your pain it just masks it, so you can cope a bit better. Another bloke on here called Paul used to use Tapentadol and it was brilliant for him before having a spinal cord stimulater fitted.
    other than that I’m afraid its what I have already said trying to find something that works for you and keep in touch with GP, Hope you find something to give you better relief soon. and as Annie says your not alone in this. Take care and best wishes. Lee

    #46556

    AnnieD
    Participant

    Hi Anthony ooh lovely Spain, lucky you! Yes pumpkin seeds only help frequency not pain. Pelvic floor did nothing for me, and I can’t tolerate any more meds either. Core strengthening exercises have helped my pelvic pain a lot. Is there a cushion to help you at all? I sit on one religiously as it exercises your muscles without you doing anything, it’s aimed at back and pelvic pain, but am not sure about prostatis. I think we’ve all hit rock bottom at some point, so you are amongst great friends here. Am trialling ylang ylang on another post, it is calming and I am feeling benefit.
    I really hope you find something to help you soon take good care AnnieD

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