Lyme disease

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This topic contains 5 replies, has 3 voices, and was last updated by  Di 1 month, 4 weeks ago.

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  • #47052

    Di
    Participant

    Does anyone know if there is a treatment for long standing Lyme disease? I know it’s treated with antibiotics if caught soon after the infection but I’m talking some 40 years on after all the problems it causes have developed. My GP is clueless about Lyme.
    It’s in teh news a lot just now but only about newly diagnosed cases.

    #47055

    Lc
    Participant

    Hi Di, Ask your Gp to refer you to a specialist in this field for long term chronic effects of Lyme disease . especially if you still have symptoms of illness long after the antibiotic stage. Sorry I don’t know the answer for treatment.
    I hope you get the problem sorted soon take care and best wishes. Lee

    #47072

    Di
    Participant

    GP isn’t interested. My test result was negative back in the 70s so he insists it isn’t LYme. It was negative because it was done within a week of the bite and my body hadn’t yet produced antibodies. Also the test is very unreliable. So I was never even offered antibiotics. A dermatologist was sure it was Lyme until the results came back. You have to remember Lyme just wasn’t known or understood here in the 70s. I had the tick bit in America and came home with the bull’s eye rash and a high flu like fever; all typical signs. Since then doctors have guessed at everything under the sun and finally, having ruled out everything else, decided it must be FIbro which is definitely isn’t. GP refuses to refer me to anyone because of that 40 yr old test result.

    #47074

    Lc
    Participant

    Hi Di, I was talking to someone the other day about you,she spent some time in america in her younger days but now back living in this country,and she said that there was another disease very similar to lyme disease, HGA ,spiro…. ,something, I cannot remember,and never said what the HGA was, but it is common from a deer tick. but doesn’t quite give the classic bulls eye rash but is similar, that also gives the same long term effects, same as lyme disease.also quite common in America and said most GP’s in this country wouldn’t know and would be hard to diagnose and would need a specialist in this field in tick diseases to identify it.
    So my advice is get a second opinion from a Different GP and mention this, to get a referral to a Specialist in this field. especially if it wasn’t confirmed to be lyme disease, Hope this helps you some what and it was all new to me, as I hadn’t a clue.Let us know how you get on.
    Take care and best wishes, Lee

    #47076

    Helen H
    Participant

    Hi DI

    as you may know, I have lived with ME for 30 years, and there are some similarities. On the ME forum I belong to there is a mini forum for Lyme Disease, where you can find tonnes of info.

    The Forum is Science for ME and this is the link to the Lyme forum:

    https://www.s4me.info/forums/infections-lyme-candida-ebv.36/

    Helen

    #47091

    Di
    Participant

    Thank you very much for the last two posts. Much appreciated. |Sorry I haven’t been on for a while; in to much pain to sit at the computer. I will check out the ME forum although I doubt if my GP would be willing to do anything about testing for the other tick disease. I have a lot of American contacts plus the lady I stayed with when I got bitten so I will ask them for the name. I think I know what you mean.

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