Lyme disease

[Di]

Does anyone know if there is a treatment for long standing Lyme disease? I know it’s treated with antibiotics if caught soon after the infection but I’m talking some 40 years on after all the problems it causes have developed. My GP is clueless about Lyme.
It’s in teh news a lot just now but only about newly diagnosed cases.

[Lc]

Hi Di, Ask your Gp to refer you to a specialist in this field for long term chronic effects of Lyme disease . especially if you still have symptoms of illness long after the antibiotic stage. Sorry I don’t know the answer for treatment.
I hope you get the problem sorted soon take care and best wishes. Lee

[Di]

GP isn’t interested. My test result was negative back in the 70s so he insists it isn’t LYme. It was negative because it was done within a week of the bite and my body hadn’t yet produced antibodies. Also the test is very unreliable. So I was never even offered antibiotics. A dermatologist was sure it was Lyme until the results came back. You have to remember Lyme just wasn’t known or understood here in the 70s. I had the tick bit in America and came home with the bull’s eye rash and a high flu like fever; all typical signs. Since then doctors have guessed at everything under the sun and finally, having ruled out everything else, decided it must be FIbro which is definitely isn’t. GP refuses to refer me to anyone because of that 40 yr old test result.

[Lc]

Hi Di, I was talking to someone the other day about you,she spent some time in america in her younger days but now back living in this country,and she said that there was another disease very similar to lyme disease, HGA ,spiro…. ,something, I cannot remember,and never said what the HGA was, but it is common from a deer tick. but doesn’t quite give the classic bulls eye rash but is similar, that also gives the same long term effects, same as lyme disease.also quite common in America and said most GP’s in this country wouldn’t know and would be hard to diagnose and would need a specialist in this field in tick diseases to identify it.
So my advice is get a second opinion from a Different GP and mention this, to get a referral to a Specialist in this field. especially if it wasn’t confirmed to be lyme disease, Hope this helps you some what and it was all new to me, as I hadn’t a clue.Let us know how you get on.
Take care and best wishes, Lee

[Helen H]

Hi DI

as you may know, I have lived with ME for 30 years, and there are some similarities. On the ME forum I belong to there is a mini forum for Lyme Disease, where you can find tonnes of info.

The Forum is Science for ME and this is the link to the Lyme forum:

https://www.s4me.info/forums/infections-lyme-candida-ebv.36/

Helen

[Di]

Thank you very much for the last two posts. Much appreciated. |Sorry I haven’t been on for a while; in to much pain to sit at the computer. I will check out the ME forum although I doubt if my GP would be willing to do anything about testing for the other tick disease. I have a lot of American contacts plus the lady I stayed with when I got bitten so I will ask them for the name. I think I know what you mean.

[john]

On Nov 3, 2016, I was told I will not be getting a kidney transplant because I have blood circulation problems. I live in the US.I had Lyme disease which I have done everything within medical field with no results. i developed venous statis in which the capillaries pop and my skin darkens on both my legs below my knees and above my ankles.I have a inherited kidney disease as FSGS and minimal change , two kidney disorders. I was diagnosed in 1985. At that time, there was no treatment for me because my blood was normal but I had proteinuria alot of it.My kidney disease didn’t really get bad until 2006, then I was referred to a kidney doctor. He prescribed predisone. It didn’t work on me. It was supposed to slow down the disease. But my problems befan to appear in 2012, when I started to gain weight, I thought at the time I was eating too much, but I later discovered it was excess water. Because later that year, my legs started to leak water. I actually had to squeeze the water out of my socks and trousers. Then I developed claudication which causes pain on my calf muscles in the back of my legs. I would walk a few steps and they would seize up. I would rest a few moments and the pain would go away. Then walk a few more steps and again experience pain.Then in February 2014, my kidneys finally failed and I was put on haemodialysis. Then I lost circulation in my toes, then gangrene then amputations in May 2014 on my left foot then my left leg below the knee in June 2014Then my big toe on my right leg, on October 2014, and theno the rest of my toes in Nov 2014.By July 2014, I lost 40 liters of of water or 88 pounds of water through haemodialysis.I thought since I had 20 other medical problems besides my 2 kidney disorders that I wouldn’t qualify for a kidney transplant. Plus I have 47 chromosomes.But at least, I now know, I won’t be getting a kidney.Unless someone invents a cure for poor blood circulation.Not every one who has a chronic kidney disorder will have the kind of problems I have had.recently I was introduced to a herbalist from China by a doctor friend from India, I have to fly from India where I went for the treatment to meet with the herbalist dr sale bashiru in China.just in about 3 months later I was cured of this diseases with herbs and oil.

• This reply was modified 3 years, 2 months ago by Jan Sadler.

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