Hospital

[Hope]

I was referred by a GP to hospital a few days ago where I
had a CT scan , nothing untoward showed up despite me being
in agonising pain, therefore I was sent home in terrible pain
with no follow up or referral to a different ward.
Has anyone been referred to hospital and been referred to a different
ward because no one knows what’s wrong with you ?
I have specific symptoms but no one is listening to me, this has
been going on for a long time now and I’m not coping with the constant
agony I’m in . Any ideas on what I can do to find out why I’m having this pain .

Thanks

[anniekat]

Hi Hope,

That’s all very unsatisfactory isn’t it.

Did you get a discharge letter when you left hospital after your scan?

I’d go back to your GP and explain what’s happened and ask for him/her to refer you on to a specialist. There must be something wrong somewhere or you wouldn’t be in so much pain.

I do hope you get it sorted very soon. It’s the not knowing that’s the worst thing, isn’t it.

Annie x

[Hope]

Hi Annie
The pain is the worst thing but not knowing
the cause is worrying me .
My discharge letter is lies , it says ” You have been reassured ”
No way was I reassured and I said surely you can’t send me home
in this amount of pain . I will have to see my GP but referrals
take so long if you can get one and I’m struggling to cope with the pain .

NHS = No Hope Service .

[Lc]

Hi Hope That’s not good enough really is it and can understand your frustrations, as Anniekat says, go back to your GP and and explain to him/her. I had a case last year and was sent to hospital with no satisfaction from local hospital and went back to my GP ,explained that i had no satisfaction or explanation nothing, just got fobbed off,luckily I have a good one, and they wrote to a specialist and explained my plight and within a week had an appointment and was sorted out straight away. at least they can do is get your pain under control so you can manage a bit better while they are investigating you. good luck, let us all know how you get on . take care and best wishes. Lee

[Laura]

So sorry to hear about your troubles, Hope. I can identify with your problem as I too have terrible pain which can’t be explained. Mine is in the kidney area, am up all night in terrible pain, vomiting etc, this happens sometimes once or twice in a week then nothing for 3 months. The CT scan I had 2 weeks ago show nothing wrong but when I pinned the doctor down (not physically!) he admitted that the long delay in my getting a kidney operation causes the intermittent pain. So there was an answer but no-one wanted to tell me.

Can you identify anything that you’ve had previously being connected to the current pain? Can you speak to your GP again and get a second opinion as it’s not good enough to leave you like this. Do hope you get so me result soon.

[Jan Sadler]

Hello Hope

You might find our Diagnosis Check List helpful:

http://painsupport.co.uk/wp-content/uploads/2014/11/diagnosistipsandchecklist.pdf

Good luck – and keep in touch.

Jan at PainSupport

[Hope]

Hi Lee , Glad you got sorted . My problem has been going on for 4 years
now and getting worse all the time .

Hi Laura, Sorry you are suffering too . My problem points to my
bowel /colon but because nothing is showing up to cause this pain
they won’t do anything . I’m in constant pain which is excruciating
After a bowel movement. It never let’s up unless I go 2/3 days without going .

Hi Jan, Thanks for the checklist. It will be a great help and I
Will certainly be using it .

[Lc]

Hi Hope , I had problems a number of years ago now, with stomach pains every day and i had a colonoscopy done, just a thought if you have had this done, in my case they just put it down to some medication i used to be on or IBS. as they found no real problem with me. this lasted about a year then suddenly went as fast as it came. never did find out the real reason for it . hope they get you sorted out soon. could it be a diet problem, some thing you eat that’s causing you problems, just a thought. what ever it is i hope you get answers soon. let us know how you get on. take care and best wishes. Lee

[Di]

I don’t want to depress you but I had 10 years of that; taken in for 3 weeks just waiting for scans etc and when nothing showed, sent hom back on eh merry go round with more referrals and months of waiting. I eventually had one neuro dept who called in their pain team because they could see how much pain I was in.. If one dept can’t find out what’s wrong they don’t seem able to pass you on to another one; they just don’t work together. After 10 years of back and forth and seeing consultants and pain clinics privately I finally found a pain consultant who gave me an instant diagnosis. It was what I’d known for years but no doctor had heard of it. I still got no treatment because by then the damage was permanent but at least I could go back to my GP and say “See- that’s what I Told you”.

[Hope]

The same thing happened to me years ago . I kept telling my doctor
I thought I had fibromyalgia but he said no way have you got that .
He wouldn’t refer me to anyone. I did some digging and found a consultant who specialised in fibromyalgia so I went back to the doctor and said if you refer me to him and he says I haven’t got it I won’t ask again, after a lot of thought he referred me . After 10 minutes of
questions and an examination I was diagnosed with fibromyalgia!!
I went back to the doctor and said I told you I’d got it !!
It only took me 16 years for the diagnosis !
Some gp’s think they know everything.

[Author]

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