Gabapentin

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  • #47613
    Spursboy
    Participant

    I have suffered with back problems for the past 20years which over the last 7/8 years have gradually got worse.

    It started of with pain in my lower back which was helped by regular trips to a Chiropractor.

    This allowed me to continue walking with my local walking group.

    Bu slowly over the past 7 years the pain has gradually worse with pain in my lower back, down my right leg plus bot feel are numb.

    I had an MRI scan November 2015 which showed problems at L5/S1 which causes moderate stenosis compressing the L5 nerve root.

    Feb/2016 had a nerve block injection, this had no effect.

    Pain management tried Pregabalin and Gabapentin, both did not help.

    Pain was so bad now that I could only walk comfortably for 10mins, therefore walking group came to a stop.

    Had a private consultation with a spinal consultant who made his own diagnosis of the MRI scan, which was that degenerative scoliosis was producing narrowing @ L4/5 and L5/S1 plus grade 1 spondyolisthesis @ L4/5 level. He suggested a lateral recess decompression surgery which I had December 2017.

    Result being that the surgery made no difference and the specialist said that I would have to learn to live with it!

    Have tried living with it but GP sent me for a further MRI scan June 2019, followed by another nerve block injection, which also has had no effect.

    GP now also says that I will have to live with it.

    The pain is slowly getting worse sometimes stops me sleeping.

    I have just been prescribed Gabapentin 300mg three times a day, having seen some of the side effects I’m having second thoughts.

    Anyone been prescribed these for pain, did they help?

    #47615
    Lc
    Participant

    Hi Spursboy, For me personally I had adverse reactions to Gabapentin, and can only take amitryptiline, but they reckon that gabapentin it’s the best one for nerve pain, and know many others that are on it and have been for years and it’s almost taken the nerve pain away for them. But like all things what works for one doesn’t mean it works for you. Just got to try all these meds and alternative ways to find what helps you manage and cope the best way for yourself. I’m in a similar position as you, and any break through nerve pain I use a Tens which masks the pain and helps me carry on , just got to try and keep moving as best you can. also use meditation and relaxation technics and keep my mind focused and concentrated on other things like my art work ,wood carving ect. which help me cope with it all. Have you tried lidocane patches on the area you mention L4-S1 ? that helps a lot of people. Take care and best wishes also stay safe, Lee

    #47616
    Lc
    Participant

    Forgot to mention we are just in one of those groups that they don’t know what to do to help us get out of pain. I also found that heat pads and swimming helps me a lot but in these uncertain time thats gone out the window until further notice.also all them injections nerve ablation ect. were either short lived or didn’t work for me either, Hope you find something to lower your pain soon and just weigh up the pros and cons of gabapentin as to whether you keep taken it. Take care ,Lee

    #47617
    PaulT_99
    Participant

    For me those never worked for me at all.
    Tapentadol was the only drug that worked for me, as it is a dedicated Nerve Pain drug. Relatively new too as it only came out in 2012.

    I would think that you would be a candidate for SCS.
    Spinal Cord Stimulation.

    If you are near London, i would highly recommend St Thomas. They are recognised as the leaders in the UK for pain management.

    https://www.guysandstthomas.nhs.uk/our-services/pain/chronic-pain-neuromodulation/chronic-pain-neuromodulation.aspx

    #47620
    Helen H
    Participant

    Hi, i am one for whom Gabapentin really gives bad side effects, but many people find it helpful. For me Amiltryptyline has been so helpful, as it gets me to sleep even when pain’s bad.

    There are many things i do that help me, from using heat pad and tens, to meditation and stretches. There are some really good ideas in the blue menu bar at the top of the page on self care- i think it’s under pain relief. Pain can really drain your mental health, and keeping that strong helps me cope better.

    It is clear from our forum, that the medication that helps one person, can be unhelpful for someone else.

    Take care
    Helen

    #47626
    thenunn
    Participant

    Hi , Happy Easter 🙂 I am on GAbapentin 3 x 300 a day , I would say it makes no difference ,I would say still have pain ..however..on the occasions when I have said right in cutting down ,I have noticed after about four or five days ,my pain is much worse and so too my walking ability . So for me I will say they do help , I also take cocodomol,when and if required ,which works differently but again does help . I didn’t get on with tramadol or amitriptyline, and am loathed to try any others.
    I do find keeping active ,and putting in rest periods also helps. I stretch regularly throughout the day and I do use meditation/ relaxation music/hypnotherapy which help. When things are just too much I have a nice hot bath and for 15 mins i have no pain !! 😀 bliss!!.
    I hope you find your help . X

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