Can't feel bottom of legs

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This topic contains 28 replies, has 3 voices, and was last updated by  Lc 2 months, 2 weeks ago.

Viewing 14 posts - 16 through 29 (of 29 total)
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  • #46878

    Di
    Participant

    Oh Lee I do completely understand what you say about operating and taking the risk. I feel the same. I’ve had abdominal adhesions for 30 years which at times are unbearable and I’ve even begged a consultant to remove my lower intestines and give me a bag just to be free of the pain. Did you see the lady in the news last week who had finally persuaded them to amputate her leg because of CRPS. She looked so happy afterwards. Didn’t that young girl go to the clinic in Switzerland because of CRPS too which made her so depressed she couldn’t take any more? When did quality of life become so unimportant? My dogs get more humane treatment than we do.

    #46886

    Lc
    Participant

    Hi Di, Sorry I don’t watch the news and some other programs like eastenders and jeremy kyle,and reality shows, they just really aggrivate me and makes me angry, been like this since my depression and doing CBT and Mindfulness, so steer clear of these programs.I think there’s enough going on in reality without watching it.
    But a very close friend of mine knew someone that had this, and had lower arm amputated after years of pain. so I have heard of this sort of thing. Crazy world that animals get better treatment and sorted out faster than humans do.
    It always starts at the top those who have no problems like us,and have not got a clue what it’s like to live in poverty,and live in pain, that make rules, then when the day comes for it all goes bang, will hide away underground. and leave the rest to fend for ourselves as best we can.with no answers. that’s just the way it is, it’s all very sad really i think.
    Anyway I sincerely hope that it goes well for you on the 17th, and things go forward into helping with your problems and pain.and wish you well.
    Take care and best wishes.Lee

    #46888

    Lc
    Participant

    Hi Di, by the way I think that is disgusting the way you have been treated in the past. you should have written a letter of complaint. I done this just recently to my local GP Surgery. No answer as yet, but they did sort out my meds pretty sharpish and now all ok. til next month. then see what happens. take care and best wishes. Lee

    #46889

    Di
    Participant

    Well, I Just had 3 wonderful days with no pain anywhere. Culdn’t believe it. I stopped taking my statins for just 3 days. I thought I’d found the cause and was thrilled.
    Got up this morning with nerve pain right up from feet to thighs, numbness and pain in tailbone worse than before. TOday’s been hell trying to sit down. Legs have eased slightly during eh day but not tailbone. What on earth is going on? Can’t see GP until MOnday. Scan on bladder and abdomen tomorrow meaning no food until 4pm . Eeek

    #46890

    Lc
    Participant

    Hi Di, Well ,look at it this way ,you had a bit of a break from pain. which should be treasured. Also that things are moving in the right direction if your getting scan and seeing GP. Good luck with this.
    just a thought, i might be wrong, but pain in your tailbone could be the way your sitting, as when I sit a certain way leaning slightly backwards and bottom slips forward a bit, it puts pressure on my tailbone which after time causes pain and numbness in thighs to feet and can last a few days,but if I sit straight up and tilt pelvis slightly forwards which makes your back slightly more arched,and lean a couple of degrees forward, so in effect your sitting on top of thigh joints it takes the pressure off of tailbone, and does not hurt as much. but sitting to long causes me pain whatever I do. unless I sit on a pressure cushion I can sit for a bit longer. It could be nothing to do with your problem but might help a bit.going for a bit of a break away from Friday,Let us know how you get on, Any way take care and best wishes for tomorrow and Monday, Lee

    #46899

    Di
    Participant

    Ooh I Long for a few days away but even the thought of a strange bed horrifies me. Haven’t been anywhere in 6 years now and only managed one visit to my son who is only an hour away.
    SCan went well but is for an unrelated problem.
    I just feel I want my left leg off now. Bakers cyst behind my knee has leaked and is sheer agony down back of calf on top of the nerve pain up the front. Insisting on a referral when I see the GP but no doubt that will be months ahead.

    #46900

    Di
    Participant

    A quick update. Saw my own GP at last who produced a letter from a neurologist I saw back in April about another problem. IT had no answer for that problem but did point out what is causing the lower leg pain. I have spinal stenosis at L3/L4. He’s also referred me to his senior consultant for a second opinion so if and when I ever get to see him, he may have some answers to the stenosis.
    GP doesn’t want me on any more tablets which I totally agree with but he did say that he’s not allowed to suggest an osteopath but the one I’ve seen in the past is really excellent even though he’s not allowed to suggest it LOL

    #46917

    Lc
    Participant

    Hi Di, I find nerve pain the worst type of pain, and it does get you down at times. also understand how you feel with that type of pain, without the added extras that is going on with you, with the bakers cyst. multiple issues all at the same time does test your coping strategies and mental health. At least your started to see different people that may or may not help you with your diagnosis , Stenosis is basically narrowing of the holes in your spine that the nerve travels through so basically compressing your nerves, which I think and sounds like it could well be stenosis, and if this turns out to be the case, it’s a case of managing your pain or there is an operation to enlarge the holes where the nerve is compressed but is mainly a last resort, as with all ops there are risks. this is where I find a tens machine is useful along with Amitriptyline which is the only nerve drug I can take ,tolerate with out having adverse reactions or cannot tolerate. it doesn’t fix the pain problem but it does mask it for me so I can cope better. or there’s nerve ablations which for me where short lived or didn’t work.but know some that it works well for, and can last a few years.
    I was told by my surgeon and top physio to steer clear of osteopaths as it would just aggravate and make it all worse for me. and said a lot of people end up in hospital or physio because of them. there is one women I know who has hypo flexibility in her back and swears by an osteopath. but at the end of the day, if it works for you then do it. But if it is stenosis, personally I would stay clear as this could make your nerve pain worse and aggravate it all.and if you do go, make sure you tell them your diagnosis before treatment. other than prescription pills maybe try CBD oil or look into it, but again it,s finding one that suits you, and works for you, if it does anything at all for you. In the mean time stay resilient to what’s going on, and hope you get to see the senior consultant sooner rather than later. Take care and best wishes. Lee

    #46962

    Di
    Participant

    Thanks for your reply. I do have a TENS machine but I find it always aggravates the nerve pain, no matter what setting I Use. IT seems to magnify it although I haven’t tried it at the bottom of my spine.
    According the MRI report it actually says stenosis, narrowing of spinal canal at L3/4. Afraid Amitriptylene or nortriptylene even at half dose, make me like a zombie and GP has told me CBD oil ( which I’d love to try0 isn’t wise as they don’t know enough about its effect on the heart. I had a heart attack last August. I’ve found an osteopath to be wonderful for fibromyalgia and know one who is extremely gentle, does no manipulation but works on muscle attachments. The muscles in my back are rock hard and he can relax them but yes I am very wary of making anything worse like the hospital physio did.He twisted me around so violently he caused a hiatus hernia. It is difficult with so many problems; heart, two herniated discs in my neck, peripheral neuropathy, fibromyalgis, T 12 nerve trapped for 20 years, pudendal neuralgia and adhesions, bakers cysts, bladder damage costochondritis. It’s very confusing for doctors to work out just where pain is coming from. I thought my heart attack was just a muscle spasm in my back. IT was only an on eh ball paramedic who picked it up and once in hospital even the nurses there ignored me for 5 hours because I wasn’t sweating, in agony with chest pain or looking pale. They still don’t know women get heart attacks differently to men. EVen today I had to phone he GP because when I went to the loo, it was bright red. She asked if I had pelvic pain> Well of course I do- I always have it from he nerve at T12 but today it was worse yet she ignored it as being “normal”. That’s how things get missed. Anyhow as a priority I need a new cushion. Got a new wheelchair but the cushion wasn’t ready so I can’t use it yet.

    #46963

    Lc
    Participant

    Hi Di, you have a lot going on all at once, and understand why things get missed or put to one side ,mainly the lack of consistency with 1 or 2 specialists that know you inside out and everything that is wrong with you. also the stress and strains of the health service. which is putting people at risk as they don’t seem to have time to go over it all, thorough enough to find out what the actual cause is. to political and money orientated.
    Good luck with with the new wheel chair and hope you get the cushion very soon. so you can go out and enjoy the sun for a bit, even if it’s just the garden.
    Take care and best wishes. Lee

    #47020

    Di
    Participant

    Just got the cushion but it’s far too hard. I have now developed heart problems; bouts of fluttering that go on for 90 minutes and an erratic heartbeat. However that might point at least in part to the cause of nerve problems. Last week a different GP stopped my BP tablets as my BP had dropped too low and after 3 days, the fluttering stopped too. Still have an erratic beat but that seems to be easing a bit and I had a 24 hour monitor to see what maybe causing it- still waiting for the results. However it does seem to have been my BP tablets and among the side effects it warns of heart arrhythmia and in particular, low levels of potassium and magnesium which can cause tingling and numbness. GP hopes my results will be through by the time I see him next Wednesday and I’m hoping we can get to the bottom of it. It’s almost a year since my heart attack and almost every tablet I’ve been given has had to be changed because of unbearable side effects. Aside of the constant pain and the erratic heart I actually feel almost like me again since stopping those tablets.

    #47024

    Lc
    Participant

    Hi Di, What cushion did they give you if it was a Pressure relief cushion, as that’s what I use, it shouldn’t be that hard and find I can sit longer using it.
    Blimey you have had a topsy turvy year, But glad they are helping you and got to the root cause of some of the problems you were having and that now things are settling down for you and getting back to your normal self, despite the pain and hopefully the erratic heart will settle to . sounds as though your on the right track now and as the days go past will start to feel more better, Take care and best wishes. Lee

    #47050

    Di
    Participant

    Yes it’s supposed to be a coccyx cushion but it’s much too hard. I keep forgetting to phone them. I finally got my heart monitor results. It’s not atrial fibrillation as t he GP thought which is good news. It’s ventricular tachycardia;the bottom heart chamber not beating regularly; supposedly harmless but it’s making me feel utterly washed out with chest discomfort. I’d had palpitations occasionally for years but the BP tablets they put me on made it go crazy. I forgot to ask if it was likely to settle down in time. I Just feel exhausted even hanging the washing out.

    #47053

    Lc
    Participant

    Hi Di, I get Coccyx irritation sometimes which causes a lot of discomfort,also lower back and pelvic pain while sitting to long, that is why the OT said to me I would be better with a pressure relief cushion which is a lot thicker than standard wheelchair cushions.Thats why when i go out and know i’ll be sitting about or walking for some distance, I take my chair as i can sit longer in that than anywhere else.
    Any heart problem I think will make you feel drained and washed out, sometime times I have to write down a list of questions when seeing someone, as I often forget when confronted. not a problem and a lot do understand, as you got a lot going on. May be try getting a telephone conversation with GP to ask. especially if it’s playing on your mind. Just take it easy and take your time doesn’t matter how slow you are, or what people think. Take care DI and I wish you well ,best wishes. Lee

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