TMJ

Viewing 15 posts - 31 through 45 (of 45 total)
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  • #32071
    Anonymous
    Inactive

    Sandra I forgot to mention that Dr feinmann prescribes amitryptiline very often for TMJ pain. GPS are very aware of doses to prescribe for pain rather than as an anti depressant and many say it works very well.

    Hope you feel better soon.

    #32072
    Anonymous
    Inactive

    Hi Rosette

    Thanks for you posting, I am on amitryptiline 25mg 2 at night, I can’t take these during the day as they make me sleepy. They usually let me get a full nights sleep, the clogging in the sinuses and the ear clogging is just as bad as they jas ache, I am being referred by my dentist to a dental specialist to see if there is anything else they can do, this year I have spent over £2,000 on different treatment chiro, different specialist consultations privately, Reiki, massage, viisted Jan Devries in Troon and he help my realinment for a little while, have visited him twice this week, but still dull ache in right jaw and cheek area, and plugged ears, going to nurse today to get her to check my ears out. Also today I have a burning tongue do you every get this and I keep burping and this sometimes clears ears for a few seconds. I do not feel stressed or tensed but chiro usually says I am. My daughter has been going through a rough time at the moment and I could be a bit stressed about her. Any info on other meds please tell me as I may try them, have tried gabapentine and antiinflammitory stuff. Today also my right arm is sore and the constant tingling in my fingers and feet are doing my head in.

    Thanx Sadie

    #32073
    Anonymous
    Inactive

    Hi Fenella, you wrote the following a while ago…

    “I have seen a chiropractor and I have to say I was glad my first appointment was free as the woman who had 10 years experience had some interesting ideas but had I gone along with treatment I would never been as well as I am today as my musculo-skeletal specialist told me what she intended to do would have done me more harm than good and I would have paid for it.”

    Could you please elaborate on what the chiropractor wanted to do that would have done you more harm than good? The reason I ask is that I believe that I was wrongly diagnosed with tmjd by a chiropracter and that the manipulations that he did (without alerting me to what he was going to do before he did them!) have actually given me all of the symptoms of tmjd and most likely actually given me tmjd.

    Thank you.

    #32074
    Anonymous
    Inactive

    She wanted to jolt my neck back -which is fine to release tension but in TMJ you have to be really careful as one slight wrong move and could cause further problems I was advised this by Dr Charlotte Feinmann an internaional TMJ pain specialist at Eastman dental Hospital. also there is little clinical evidence to support this move.
    The pain specialist I see now said that that in fact is quite a powerful manipulation that should really be done with extreme caution as can make things worse in some patients.
    To be assessed for TMJ pain best to see someone skilled up in clinical diagnosis like a medical osteopath or musculo skeletal specialist or TMJ specialist at a dental unit.
    Treatment is gentle physio, jaw exercises, acupuncture and amitryptiline. treatment does reduce pain but sadly I have seen no evidence that is cures it. there was something else -I will ask my pain specialist.

    #32075
    judy
    Participant

    Hi all my names judy im 54 and from Cardiff. Ive had TMJ for about 15 years that i know of and im waiting to have 2 of my jaw joints replaced with the Concept joint.Im very glad that there is a forum for us in the uk.There is also a site with a special for those from the uk and there are quite a few. I dont want to steal you all away fron this exellent forum but if youd like to look at it the name isTMJ SurgeryChat.Take care Judy.

    #32076
    Anonymous
    Inactive

    Hi. This the first time I have posted on one of these forums!! I’ve recently found about TMJ disorder and thought I may have it. I went to my dentist who felt my jaw and said that he thinks I may have it too (he knows that I’ve been grinding my teeth for a long time too). I have had problems for about five years now, especially with my ears. I’ve been back and forth to doctors and ear spiecialists who have all told me there is nothing wrong and I will probably grow out of it. However in the past six monts it has got alot worse, with pain, dizziness, ear pain and deafness! So much so that I was extremely depressed last September and as a consiquence got chucked off my college course. I am now on anti-depressants which has lifted my mood, but the pain has got more extreme. I feel that I’m missing out on my social life as I can’t go out much as the pain gets bad and I cannot hear anyone when we are out! I’m only 18 years old and its starting to ruin my life!…

    #32077
    Anonymous
    Inactive

    (couldnt fit it in with one reply!)

    …I have plenty of hobbies but I feel I have neglected them as cant even concentrate on anything properly! I went to the doctor last week about my ears yet again and showed him the information I found off some websites about TMJ to which he looked at me as if I was stupid, and told me that he could not see how my ears could be ‘anatomically effected by my jaw’ (even though I showed him scientific evidence I printed off the computer – to which he completely disregarded!) I emailed a jaw surgery place in Hampshire but they never replied to me! I’m really desperate to get some help. My dentist has given me a mouth guard to wear at night but I dont feel like its helping much! I would be grateful for any advice or any specialists you can recommend anyone?!

    #32078
    Josette
    Participant

    Dear Imee,
    For many years I (and my doctor) thought that my TMJ pain was something to do with my ear because that is where I felt the pain.
    Eventually the pain was diagnosed as TMJ.
    Unfortunately, after years of the right TMJ giving me pain, my left ear joined in!! I now have pain in both TMJs.
    The person you need to see is a Maxillofacial Surgeon (I think that is how it is spelt). Ask your G.P. or your dentist to refer you.
    Unfortunately there doesn’t seem to be much that can be done to help. I find that Amitriptyline and Gabapentin help, as does applying heat directly to the painful area (see my posting above). In extreme cases I believe they can actually remove the worn TMJ and replace it, not sure what with!
    I know exactly what you are going through and you have my full sympathy – shame your doctor doesn’t feel the same.
    Love
    Josette

    #32079
    Josette
    Participant

    Oops, sorry, I forgot to say that as a last resort I find that Diazepam helps.
    Josette

    #32080
    Linda Miles UK
    Participant

    I have come to realise that the pain I get in my face must be TMJ although no-one seems to want to say it is. The dentist is reluctant to do much which I am grateful for as don’t really want any un-necessary treatment. I too find heat works I have a small electric heat pad which I sleep with under my face or I use wheat bags which I made. Medication just doesn’t seem to do anything. I give myself reiki which is soothing ans sometimes sleep holding my face. Another thing I have tried is trigger point therapy- I have a self help book and have found it gives some relief. I take medication serc 16 for the vertigo. It is certainly worse if I am feeling stressed. It really is the most unbearable pain so you have my full sympathies I hope it is better soon best wishes Linda

    #32081
    Linda Miles UK
    Participant

    Sorry I gforgot to say that I am on a waiting list for physio for vertigo where I will be shown exercises to help I already do the
    brant-daroff exercise. I tried the bowen technique but it did nothing for me.

    best wishes

    Linda

    #32082
    Josette
    Participant

    Dear Linda,
    If you haven’t yet had a proper diagnosis you could ask for a referral to a Maxillofacial Surgeon/Consultant (not sure of the spelling). They are the TMJ experts and will diagnose you and recommend treatment.
    You will probably have to wait a long time for an appointment. I cheated and paid privately (certainly couldn’t afford to do that now) for the initial consultation, then continued to see the same consultant on the NHS.
    Good luck
    Josette

    #32083
    Anonymous
    Inactive

    Thanks for all the advice! Just out of interest do you know how much roughly it does cost to go private? And although the pain probably wont ever go completly, does anyone know if there are any procedures that will get my hearing back to normal or that will atleast make it better?

    #32084
    Josette
    Participant

    Dear Imee,
    It was many years ago that I saw a Maxillofacial surgeon privately. I think the cost now is about £100. Well worth every penny in my view. After years of mis-diagnosis and unecessary investigations and treatments (e.g. one G.P. was convinced it was a chronic ear infection and prescribed loads of heavy duty antibiotics) I finally had a proper diagnosis.
    Good Luck
    Love
    Josette

    #32085
    organiclemon
    Participant

    I went to see a private max fax surgeon last year at Eastman Dental Hospital. It cost me £250 plus the x rays he wanted was another £75.

    Take care

    Fenella

Viewing 15 posts - 31 through 45 (of 45 total)
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