Viewing 15 posts - 16 through 30 (of 45 total)
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    Hi Sandra, your symptons in the face head and neck sound identical to mine. I started about 6 years ago with this and my gp kept saying it was a trapped nerve in my neck. had lots of x-rays as well, and nothing ever showed up although i have had arthritis in my neck for over 20 years due to 3 whiplash injuries in the past. My pain i unrelenting too and never lets up. It starts in my shoulder blade, runs up across my shoulder and into the neck. then up the side of the head and after a while the whole of my head and upper body are in pain. i then get very spaced out and dizzy and have fell over a couple of times. I have a friend with fms too who also had this complaint and she was told also it was a trapped nerve before being diagnosed like me with fibro. the pain then spreads all the way down my arms and fingers which become numb and tingle. thats when i drop thing. I have alot of pains also in my ribs alot but the neck is worst. sorry but nothing helps the pain. I have started using cool and soothe pain gel patches which are for migraine headache and put it on my neck for a while. will let you all know how i get on with them. take care all love Juliexx


    Hi Julie,
    Thanks for replying to me. Its a relief to know that I am not alone in these symptons. I am on dicolofenac at present, but hasnt done much. Its my legs i am more worried about, when i am out my legs feels shakey, and what with the pain and soreness in head and neck, i get frightened and feel like i am going to pass out. Hence its stopping going out anywhere. Suppose to go to work tomorrow (temping) but i have to travel to Ilford on train, dont think i can do it, feeling like this. Wish my legs didnt feel so bad. let me know how you get on with your gel patches. Good luck. xx


    Hi Margaret thanks for your reply. I was thinking about a Chiropractioner, because of my legs feeling so shakey and achey all the time. But it is finding a good one. I went to one a long time ago and he was useless, he wasnt recommended by anyone i know, just got him from the local paper. Unless they are recommended by someone who has been to them before, this is what happens. Any ideas?


    Hi I have been diagnosed from my dentist with tmj, i have bad pain in my left side ear pain bad dizziness that has stopped me going out now, nauseous all the time. Taking amitriptyline 10mg at night and co-codamol for the apin which doesnt help.. I am getting a bite guard on Monday. I would appreciate any tips for coping with the vertigo and sickness from other sufferers.


    Dr Charlotte Feinmann is a dental surgeon and TMJ specialist at the Eastman dental hospital in London and has written over 500 papers on TMJ pain.

    She has a waiting list but any GP and dentist can refer to her specialist NHS clinic.

    She is also a trained consultant psychiatrist so understands about implications of chronic pain.

    Look up about her research on the net to see if you can find info- and perhaps ask your dentist about her papers as when I saw her she gave me a lot of useful info.

    She has a good team that are very informative.

    Chiropractic is not evidence based and expensive and not what she personally recommended me.Some get good relief here but I when I had it found it very very short term and kept running back and it emptied my bank balance!

    Evidence based treatment is treatment that has been researched backed by trials and proper peer review- something this doctor has done.

    Pain physio (got it elsewhere)was what Dr F told me was ideal- and I was taught by physio special exercises to help myself with intermittent sessions.That seemed really good.

    There are other TMJ specialists around-your GP or dentist may well know of one.Medication does help but specialist advice did help me there too.

    Good luck



    My Bowen therapist told me he had had wonderful results with TMJ.
    Whilst I was in hospital I met a lady who had been suffering in agony for about 40 years, She had tried every treatment under the sun from surgery to having all her teeth removed and implants fitted. She was in for more surgery. She was desperate. I phoned her before Christmas and told her what my Bowen therapist had siad so she tried it. After more than 40 years, she is pain free. It’s not a miracle cure but it was for her. I don’t know if she will have to continue the treatments yet.


    Hi Di
    Thanks for your message. Can you tell me about this Bowen Therapy, sounds good to me.


    Just to say that osteopaths treat TMJ very well. They can manipulate your neck and head in a very safe way and click it back to get good relief. they will teach you about posture, exercises and self-management.
    When manipulating necks you have to be extremely cautious.
    I would say to anyone going and having treatment ask the practitioner how many necks they have manipulated and are they working under evidence based practice. this is what osteopaths do.It means their methods are research and back up with good solid firm scientific evidence.
    Osteopaths charge the same as Bowen therapists but have a very high level of training-in london you can access doctors who in their final year of osteopathic training just before finals of a postgraduate three year course with very tough strict exams-will treat you very cheaply.

    Hope you find something that works.


    Participant gives you all the details. Please remember that what works for one won’t work for all and an awful lot depends on the skill of the therapist as with any treatment.



    I wonder why you say that ‘chiropractic is not evidence-based’?

    If i search for ‘chiropractic +research’ or ‘chiropractic +evidence-based’, i can see that there is indeed published chiropractic research. And, ‘Evidence-Based Chiropractic’ is one of the taught course units in chiropractic courses.

    I have greatly benefitted from chiropractic.
    But, chiropractic is not for everyone or for every condition. But, the Chiropractor was personally recommended to me by the Orthopaedic Consultant who replaced my right knee. He had worked together with the Chiropractor and was greatly impressed with his results. The Chiropractor has greatly reduced my spinal curve scoliosis, improved my knee straightening after knee replacement and thereby reduced the leg length discrepancy the physiotherapist could not move the knee any more. He improved the TMJ by improving my back alignment and neck/head alignment. Neck was not manipulated.

    Oh yes, apart from the medical information, i was asked to fill in standard research questionnaires before chiropractic treatment so that progress could be monitored over time – symptoms, pain, impact of symptoms and pain on well-being, functioning in daily life and quality of life.

    I personally wish that chiropractic and osteopathy were taught more widely in the UK and freely available on the NHS!



    Margaret I am delighted that you had excellent results.

    Sadly if you did a scientific controlled trial you would probably find that those who have long term complex problems do far better with osteopathy and musculo skeletal/orthopaedic medicine specialists who work in evidence based way that is scientifically proven against other therapies for long term relief.
    Chiropractic does work, and does work long term in certain cases however there is a concern that as isolated practitioners who don’t work attached or liaise with medical teams they often continue treatment when a more suitable treatment can or shouldbe offerred that they cannot do.

    TMJ pain is complex and Dr Charlotte Feinmann who has written over 500 reserach papers on it has found little scientific evedence for chiropractic as a long term results treatment and the fact that TMJ affects other medical issues means that a multidisciplinary approach is crucial.This treatment by a multidisciplinary team is free too.

    I have seen a chiropractor and I have to say I was glad my first appointment was free as the woman who had 10 years experience had some interesting ideas but had I gone along with treatment I would never been as well as I am today as my musculo-skeletal specialist told me what she intended to do would have done me more harm than good and I would have paid for it.

    Having said that if it works for some and people are happy to pay then that is ok too.

    The reason it will won’t be offerred on NHS yet and osteopathy and acupuncture are availabale on the NHS although limited is that those two therapies are scientifically evidence based with very effective long term results.

    Take care



    hi fenella, what is a ‘multidisciplinary team’ – don’t think we go in for those in this part of the world! we don’t seem to go in for ‘teams’ in our neck of the woods! annie


    Hi there I have suffered from this for more 30 years well I think it is TMJ, no one has actually confirmed this waiting to see dental/facial specialist. Have had MRI’s and Cats on sinuses as for years I was taking antibiotics for so called sinus stuff and 2 operations to see if there was anthing visible. nothing showed have spent to much money on things private consultations etc. Went for a Vega check last year to Jan Devries and it showed problems in jaw area, and went to see him and he says its TMJ. Although my GP hasn’t confirmed this, have been attending him for a year once amonth sometimes twice, and I was realy good there for a couple of month then last week its away again. Symptoms Blocked ears, facial pain and aching jaw, back of head just above neck has dull ache, and hands right arm and feet a needles and pins, sometimes my tongue goes numb and the inside of my mouth and I feel as if my sinuses are blocked it ruining my life, I am frightened to book holidays are usually before I go I feel ill this could maybe the tension thing, Am also paying for Reiki treatment at moment, anyone with suggestion please help


    Dear Sadie,
    As you may see from my posting/s above, I have suffered (and I mean suffered) from TMJ pain for over 20 years. I have been through all the things you have – the presumption that it is an infection, heavy duty anti-biotics, various consultants, MRI and CAT scans etc.
    Although I don’t believe that the problem is CAUSED by stress, stress definitely causes flare-ups. I had to stop working outside of the home (well paid, interesting job) a few years ago, and (touch wood, etc.) during the past year (once my fight with my ex employer was resolved and I finally came to terms with not working) the pain has slowly reduced until I rarely have it at all. For me, there is definitely a link between stress and the pain. With less stress there is less pain. Unfortunately I also have Fibromyalgia (which may, or may not be related to the TMJ pain), so I am still in pain and take a cocktail of medications but the TMJ pain is now a rare occurance.
    As I no longer have to leap out of bed to go to work, I have “trained” myself to turn over in bed and lay on the “bad side” (I have TMJ only in my right jaw joint) for 30 mintues before getting out of bed. This seems to “re-align” my jaw thus preventing the TMJ pain starting in the monrning.
    Do you work? do you have stress (either at work, or at home)?
    If you would like me to tell you of the various medications that I take (I may have mentioned them previously in postings) just email me. The meds may not work for you and I am not sure that the meds have helped with the TMJ – I have a “good” tale to tell re having full strength morphine after an op. and yet STILL I could feel the full pain from the TMJ).
    Good luck and best wishes


    Annie just noticed your question! So sorry!

    a multidisciplinary team MDT is a team of say the pain consultant, physio, OT, specialist registrar and psychologist and maybe a complementary therapist.

    In mental health it is psychiatrist, psychologist, specialist nurse, OT etc.

    GPs in primary care are also part of a Primary Health Care Team- GP, practice nurse, district nurse, counsellor, midwife, psychiatric nurse

    each speciality usually has a multidisciplinary approach meaning they all work together for the benefit of patient. Whichever specialty.

    Hope that explains it!

Viewing 15 posts - 16 through 30 (of 45 total)
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