severe piriformis pain

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This topic contains 17 replies, has 7 voices, and was last updated by  Paul 4 months, 3 weeks ago.

Viewing 15 posts - 1 through 15 (of 18 total)
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  • #30432

    hottieas69
    Participant

    Hi all, looking for help and suggestions please

    I have had a severe sharp,burning, shooting pain in my buttock just to the side of my sacrum,with pains going down my left leg into the back of my knee ankle.
    This has been present since june 2011 and I have since been on sick leave since then,due to sitting down increases the pain,I find lying down eases the pain.
    On a good day the burnings always there just tolerable with tramadol, naproxen, nortriptyline. On a bad day I will be on full doses and still be in agony. I’ve tried pregabalin, gabapentin, which caused serious urine retention, and I ended up being catheterised. My gp finally sent me to pain managment who did steroid injections directly into the muscle.
    After the initial set back caused by the injections irritating it, for 2.5 weeks I had great relief even thought I may return to work, then just this last week or so the pain has returned to the debilitating state I was in before the injections. I have been in bed resting since.
    Every day I do core stability excerises and piriformis stretching, ice and head. I am also a massage therapist myself, so do self help, when I feel its need, and do visit a good friend/ therapist who performs releases and massage for relaxation.
    Now I’m at a loss because the pain is so bad…..
    Any suggestions would be great thanks for listening
    Hollie x

    #30433

    mozy
    Participant

    Hi,i can understand the pain you are going through ,as mine was also severe before i saw a pain specialist,who gave me a injection for the piriformis , the pain from having the injection was also very painful, but did relieve the siatica i was having.All i can sugest is ice packs that really helped me, and maybe try another injection if it dosent settle down.mosy

    #30434

    Abbeystead
    Participant

    From what you describe, I have exactly the same pain and have done for the past 8 months or so. Only relief is lying in bed and even then its not 100%. Everything I have is put down to FM. Am just taking dihydrocodeine but itt doesntt help,oh also diazepam. A few years ago was given an injection but the pain from that was worse than that I was experiencing. Dying to get out and do my garden but there is no way I can bend down now. he frustration is diving me mad.Have at long lastt got an appointmentt at Pain Clinic on Thursday so am keeping my fingers crossed that they can treat me without injections. (some hope). The burning pain is unbelievablle isn’t it. Was a relief to find someone with exactly the same syptoms as myself.

    #30435

    hottieas69
    Participant

    To mozy,

    Thanks for listening, I have used ice and heat for along time, I’m naturally a cold person, but do suffer the ice for short periods…I’ve took to lying down on my heat mat an excersizing 2-3 times a day, just light stretching! Huff for a 26yr old who is normally fit and well this has stopped my life! If you have any more ideas please post..thanks mozy

    To Abbeystead

    Thank you for listening and I’m really sorry about the pain your in because if its like mine I know you have it bad! I have called pain management this morning they are going to bring my appointment from july 2012 forward….how forward I do not know, will find out when they post me an appointment.
    I forgot to mention earlier I am having emg and nerve conduction studies done on the 14th march to see if the nerve is damage, and have had mri head neck and sprinal mri’s and everything is perfect in that respect but that top of my buttock from sacrum to hip is killing me!!
    I do hope something shows up (not that I want anything) but I feel like the drs think its all in my head and that I’m moaning about nothing but when your so young and this hits you, out of the blue it has completely stopped me living.
    Keep your fingers and toes crossed, don’t cross Your legs it irritates my back more lol
    Wishing you both well
    Hollie xoxo

    #30436

    Abbeystead
    Participant

    Holly, as I said before my pain is exactly the same as yours honestly. Am used to pain all over the place due to the FM but this is defintely different. It has been suggested by Rhuematologist that it may be Pupendal Neuralgia.T he pain is in the same place as you have and radiates into my bowel and other female parts, if you know what I mean. Had a CT scan last year but nothing showed up. Have asked my GP for an mri but they just dont want to know. When I stand up have to think before I place my foot on floor. Dont know if I mentioned earlier but my appointment came out of the blue yesterday when they rang me for Pain Clinic. God I hope they confirm exactly what it is. Cant take this pain much longer. Been out once since Christmas and that was to the doctors. Keep me informed of what happens with you.
    Cheers.
    Avril.

    #30437

    hottieas69
    Participant

    Hi guys!
    Hope your both doing ok…?

    Thought i’d give an update being as though i went missing for a few days…
    Saw my gp today who decided to give me a good old poke in the piriformis area! I let out a painful shreak and grabbed his hand and said dont do that…added please on the end and slowly let go of his hand….and since that i have ended up in bed in agony and now my mom doesnt know what to do with me!!
    He has changed my tramadol to co-codamol 30/500 which i am reluctant to take as the tramadol didnt work so why would these…anyway will do as i am told.
    I’m looking forward to tomorrow (14/03) as I am having my emg and nerve conduction studies done at Birminghams QE hospital, yet i am hesitant as its someone new touching my painful area!!!
    They have brought my pain clinic appointment forward to 22/03 (my birthday) and i am taking my mom for back up!! shes just kindly reminded me i have been out of action for 9 months nearly to the day!
    will let you know how i get on tomorrow in my next update
    i hope your all having better days 🙂
    thank you
    Hollie
    xoxo

    #30438

    hottieas69
    Participant

    Evening all!

    After having my nerve conduction and emg test, which everything was normal… i have since been to pain clinic.
    The nurse was amazing! She said she didnt think it was piriformis syndrome, it could be sacroiliac joint dysfunction and was going to send me for diagnostic injection to make sure…in the mean time she prescribed capsaisin cream and versatis patches…
    I humoured them by trying this cream. Must say there was really no point as the tesco’s own deep heat cream is far more effective than what they gave me.
    So today when i called the surgery and spoke to the secretary at my own gp’s she said i would need an appointment for them to be prescribed even though the consultant already wrote the letter to my gp asking him to prescribe them…
    I’m not holding out much hope that they will resolve my pain but i am not willing to give up on myself as this is the feeling i get from my gp everytime i see him!! i feel like i am pestering him and that i am wasting appointment time…
    lets see what thursday bring…
    if anyone knows of anything else i can try feel free to email me

    thank you
    xx

    #30439

    Di
    Participant

    Have you tried a TENS machine? I just had bad inflammation over my SI joint and the TENS did help.

    #30440

    hottieas69
    Participant

    Evening Di

    Thanks for you reply… 🙂
    I have been using a tens machine on and off over the best part of 10 months…. it just seems to irritate the area, and make the pain more severe.
    I will try anything and everything so if any you have any more ideas, I am greatful for any replies 🙂

    Thank you

    #30441

    Di
    Participant

    Abbeystead, Take a look at the pudendalhope website. There are excellent diagrams on there that show where PN pain radiates to and suggestions of other nerves that may be affected

    #30442

    mozy
    Participant

    hi,just seen your post for today,i also get symptoms the same as you,on my first session of physo in the pool,i did to much and the stabbing in my sacrollic joint area came back again aswell as the pirformus muscell and the trigger points hurting.,siatica down my left leg aswell,it was so bad i couldnt sit down ,and i didnt go to my physo,it has now settled down.

    #30443

    mozy
    Participant

    hi, as i was saying,the only thing that worked for me was to rest it as much as possible,i can only have paracetamols now, and i use a volterol gel to rub on,reflexology,ice packs and heat,like you tens machine irrated it,so did accupunture i also listen to jans relaxtions,i also think its a trapped nerve ?nobody proved what it is yet but it so painful ,dont how you can stand it continually

    #30444

    mozy
    Participant

    hi,again ,i looked at the web site Di sugested and i think thats worth looking in to .thanks Di.Mozy

    #30445

    AngelsKiss
    Participant

    Hello, I just read your post and know that it’s sciatica…I am from the US. It is also Radiculopathy and Bursitis at this point. I too was an active person in excellent physical condition…until I became a chronic pain patient. I have gone through all the therapies until the only thing left was drug therapy. I take Dilaudid – without that one drug, I can not get out of bed. I also take Gabapentin, Valium, Topomax, and us Lidoderm Patches. I use ice only when I have to and live on a heating pad most of the time as my body is unable to hold it’s own temperature. I see Neurologist, Pain Specialists, Rheumatologists, and Endocrinologists. WOW!!! You would think that healing is right around the corner, but no! I had hope for the first three years, I am in my fifth year now, and now I have cancer…and I refused Chemo and radiation therapy’s. There is a procedure for people with sciatica, it is called Discectomy or Microdiscectomy IF you have herniated discs, or there is another one that fuses the hips together through the back, but it’s brand new and dangerous…because it’s final and can not be undone…it’s similar to a fusion. Hugs and best of luck to you!

    #30446

    hottieas69
    Participant

    Good afternoon everyone 🙂

    Just thought I’d say I’ve got my atos medical today for my esa claim…I hope it goes ok and they try an understand what I’m going through.
    Had the Versatis patches on now for 3 week and my skins numb but can still feel the evil pain there!! I will keep on with them…see what happens…I know it can take up to a month to benefit from them.
    I have had my SI injections brought forward to Tuesday 1st may 🙂 I am abit excited to see if this helps my pain as everything I’m trying fails…yet after my piriformis injections I still remain some what sceptical!!
    Hope everyones feeling abit better now the rains held off….evil rain…I couldn’t leave the house 🙁
    Have a lovely afternoon will update soon
    Hollie xoxo

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