Spinal Cord Stimulator – Part 2

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Viewing 15 posts - 31 through 45 (of 58 total)
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  • #30339
    nicky
    Participant

    oh thats a shame that the one you are talkin is a rechargeable one i thought there was a new one that i didnt know about.
    At my last appointment we did discuss that my next one could be te rechargable as they said i would be a perfect candidate as in my clinic i am the only person who has to have a new machine yearly but they did tell me that for me due to poor placement of the electrodes to have it put in there would be quite a few disadvantages as well as advantages so i am weighing up the pros an cons.
    The first time you have the stimulator fitted the wait was quite long but when i need replacements as long as i have it under local they usually get me in between 4-6 weeks which is great,Though that is why we paid for the 1st machine but that rechargable one is very expensive.
    good luck with the injections i hope you get a bit of relief

    #30340
    Rob
    Participant

    medtronic restore advanced rechargeable medtronic prime advanced not rechargeable (16 leads)

    they are the two current models. I know that the one with the rechargeable battery is more expensive though it arguably saves future costs of battery changes so less operations and one off sets the other. Suppose they save if you die and need less battery changes ha ha

    #30341
    nicky
    Participant

    thanks rob are you trying to kill me off.
    My consultant thinks that because im causing the nhs so much money i will probably be an ideal patient for the rechargeable but there is another company that they may decide to go with and if they do that then my electrodes will not be compatable

    #30342
    Rob
    Participant

    So would they leave the old electrodes in ?

    #30343
    nicky
    Participant

    they will only consider me if they go with medtronic otherwise it will only be available to new patients

    #30344
    Mary Clark
    Participant

    Hi
    I have a spinal nerve stimulator fitted but for a problem in my left arm and hand. The battery is in the upper part of my left breast with the electrodes layed over the ulner nerve. It has been in place now 6 years and I have had no real problems the battery life is 10 yrs! IT HELPED ME COME OFF ALL MY DRUGS AND HAS RELEIVED MY PAIN WELL. Hope this is some help to you Mary Clark Linccolnshire

    #30345
    Rob
    Participant

    Thanks Mary
    Hope Brian is improving
    There are five others that have used this forum that I know have had excellent results as well. Two that are doing well but not perfect and one that is struggling. I wont ask them to respond as all my mailing is confidential but that convinced me in my own research. I suppose I should be grateful that it has moved life on for some and away from here. My facts are that there is a good chance if it is suitable and failure is very minimal. Hope that helps others. That is only a 13% no go rate and it can always come out again.22% improvement and 65% success. Strangely enough the current failure was given good chance of success but thats the world we live in.

    #30346
    Liz
    Participant

    Mary

    Thanks for taking the time to add your experiences to the discussions that have been going on. It is really good to hear how others hve found the SCS is for them, even though we are all different. I am looking into this as a possibility for myself and I know that Rob has been a wealth of information!!! I am very glad to hear that you have had such a good result and that you have managed to stop the pain killers, this is my ideal. If I cannot get them right down, just a reduction would be really good.
    Thanks again, any other info about the process that you feel might be of help?
    Regards
    Liz

    #30347
    Rob
    Participant

    Got my appointment to see Dr Sharma at Walton PC on the 13th Feb. so I will let you know the outcome. Hope its a lucky 13 !!

    #30348
    Liz
    Participant

    That’s great Rob

    I have had mine through too for the end Jan, so I will also let you know how things go. I will have my fingers crossed for us both!!!!!!

    Liz

    #30349
    nicky
    Participant

    hi Rob and Liz thats great news that you have both got your appointments i think its fantastic the way Rob has researched it so much. Even though im not the best success story i would still not be without my stimulator and when the battery goes i really know about it and cant get out of the house.
    I think i wouldve had even more benefit if the electrodes were in better contact with the spine
    Good luck to you both and keep me posted

    #30350
    dat183
    Participant

    Hi Liz, Nicky & Rob, I have had a SCS implant now for the last 3 years and have just recently had to have the battery replaced as my previous one was either faulty or the setting (which I was told is quite high) wore the battery life down so it didn’t last as long as I was told it would. The replacement battery that I now have is the rechargeable type which is supposed to last 10years. At first I thought would be a bit of a drag to have to keep charging it up all the time, but it isn’t as bad as I thought it would be as each charge last’s up to 1 1/2 weeks before needing to be recharged. This is done by a simple device that you wear attached to an elastic belt that you place over your internal battery site. ( I have even managed to do this at work as you can wear the belt under your clothing (depending of course where your implant is))
    I had this originally done for all the same reasons as yourselves to be able to reduce the amount of opiates that I had bee taking for nearly 10 years but unlike some of the replies that I have read I seem to be very fortunate that this has worked for me but I would add I weren’t able to stop them all.
    If I can help by answering any questions for anyone on the SCS, I have included my email address with this posting. Good luck with all your appointments and I hope you all get some benefit from having an SCS implant.

    #30351
    nicky
    Participant

    hi its Nicky im very intrested to hear more about the rechargeable stim like you my battery didnt last anywhere near as long as predicted in fact mine only lasts a year to 18 months.I have already had 6 replacements done. what stimulator did you prior to the rechargable and how many electrodes do you have on the spinal cord. To recharge the battery do you have to tape anythng on your skin or is it just the belt. Do you have to plug it in. Excuse my ignorance but i havent seen the rechargable one yet my clinic were still waiting to recieve it when i was last there

    #30352
    Rob
    Participant

    Hi Dat
    Thanks for posting and no doubt that after the 13th Feb I will have loads of queeries,. Just for now does that mean that the ten year battery will actually go into an existing stim or did you have to have the whole unit replaced? I think my next hurdle will be mainly about funding issues and how to complete the justification process !

    #30353
    Liz
    Participant

    Hi Dat and All

    I am very interested to hear that your experiences and that unfortunatley, could’t manage to reduce the narcotics. Does this mean that although you had some relief from the stimulator, it was not successful enough and has left you with residual pain that still requires narcotics? I realise that this can still be the case, but can you tell me what relief that the stim does give you, how would you describe it? Also, what percentage relief do you get? I am looking at this as a possibility but with the aim that I can reduce my medication and reduce the numbers of nerve blocks that I have to have!!!!

    With the rechargable, does this mean that it doesn’t mean changing at all, or do you still have to it changed but at different intervals??

    I probably could ask you loads of questions. I have an appointment coming up to dicuss this with a specialist, so I guess as Rob has said, I might have more and more soon…..I will let you know how things go.

    Thanks very much for letting us have the information and for your experiences…..
    Kind Regards
    Liz xx

Viewing 15 posts - 31 through 45 (of 58 total)
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