Sacroiliac fusion in GB – Part 1

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  • This topic has 104 replies, 21 voices, and was last updated 5 months ago by Lc.
Viewing 15 posts - 91 through 105 (of 105 total)
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  • #22405
    PattiS
    Participant

    I’m interested to connect with anyone who has had DIANA done in Germany, to know your symptoms prior to surgery, your surgical experience and your outcome from the surgery. I am Canadian and I’m thinking of travelling to Germany for the surgery.

    Does anyone think that si fusion causes other spinal or hip problems after the surgery? This is one of my main concerns.

    #22406
    kitty
    Participant

    I guess I’m a good person to speak to about this!
    I had my DIANA procedure in April last year in Germany and am more than happy with the results. I have a history of spinal issues and previous spinal surgeries, so I was a complicated case. However, my SI pain was quite specific-apart from showing up clearly on Xrays and scans etc., my pain was in the middle of my right buttock, radiating outwards and in the top of my leg and groin primarily. Sitting was a nightmare! I did/do get leg pain but whether that’s attributable to SI or lumbar spine, difficult to say.
    I was told that I must use crutches post-op for 6 weeks, but this was changed (apparantely in line with current reserarch here) to 8 weeks, just to be sure. This was a hassle, but totally worth it.

    I feel that I had the best treatment from a doctor who was both knowledgeable, skilled – and interested.

    Anything else you want to know let me know…

    #22407
    kitty
    Participant

    Sorry, forgot to say…

    I don’t think SI fusion causes further spinal/hip problems per say… more likely to be the other way round -and this was especially true in my case.

    One final thing I would add, tho, is that sometimes spinal/hip problems can be mistaken for SI problems, so it’s imperative to get the correct diagnosis in the first place.

    Good Luck!

    #22408
    carolinelc1
    Participant

    Hi everyone,
    I’m new here and have been reading this thread with a lot of interest – you’re an extremely helpful bunch! I hope you’ll be able to give me some advice.
    I’ve had pain in my SI for about 5 years (I’m 35 now). One morning I woke up and it felt like my whole back had seized up and I couldn’t move – I still don’t know why, I can’t remember injuring it. Since then I’ve had SI pain to varying degrees, on and off. In the past 8 months or so it’s worsened to where driving, sitting and bending have become very painful – including sciatica like pain down my thigh.
    I went to see a spinal consultant (with private medical my company provides) and had an MRI, this showed that my spine and discs were all fine so he said it must be a muscular condition and referred me to physio. I’ve been going for 6 weeks now and whilst it eases pain temporarily it doesn’t last. It was the physiotherapist who has pinpointed the SI joint.
    I’d really appreciate your advice on:
    – how do I find out if my joint has fused or not? MRI showed nothing
    – am I better going to my GP about this and asking for a referral specifically about SI?

    Thank you in advance for any advice you can give me. I’m having to work from home 2-3 days a week right now to avoid driving and sitting at a desk but that can’t go on forever and I’d really like to get through a day without wanting to cry!

    Caroline x

    #22409
    Anonymous
    Inactive

    Hi Caroline,

    Welcome to the site. I’m sorry that you’re feeling fed up and in pain.

    Do you think it would be possible for your physiotherapist to send a letter to your gp explaining what he/she thinks is the problem with your spine. Then maybe your gp could send you to an appropriate consultant.

    All the best. Annie x

    #22410
    carolinelc1
    Participant

    Hi Annie,

    Many thanks for your reply :-). I’d never thought of the physio being able to write to my GP to be honest, so that’s a great idea! I’ll be seeing her again on Tuesday so I’ll ask her then if it’s something that she can do. Hopefully this will lead to further investigations as the only test I’ve had has been the MRI of my spine so far.

    Fingers crossed!

    Thanks again,
    Caroline x

    #22411
    Anonymous
    Inactive

    Yes, definitely worth a try, isn’t it! Good luck on Tuesday then! Annie x

    #22412
    Steffiegirl
    Participant

    Hi all,

    I’m now 3 months and 17 days post op. All is going well. But I do find that after walking (especially if hills are in the walk) then Im in pain, especially around the op site and hip. I thought it may have been the physio exercises, but she said try to walk on the flat but thats pretty difficult where I live. But anyway will do my best. Tried a work out DVD yesterday and that’s a bad move also. It was a Rosemary Conley dvd and lots of squats etc. Not doing anything today.

    Think it’ll be at least 6 months before I can do the stuff I like, but hey NO PAIN anymore….it’s absolute heaven.

    All the best to everyone thinking of having this done….go for it…….

    Barb

    #22413
    JMcG
    Participant

    I met with an orthopaedic surgeon in Aberdeen yesterday and he recommended the DIANA procedure. The posts on here all sound very promising for this. Which is very encouraging. Thank you.

    Will I be able to drive? How soon afterwards? I live a long way from town and my teenagers need taxiing about as there is no bus service. I live a mile from the nearest main road and two from the nearest village.

    Also, what should I be asking the surgeon when I go back to see him?

    #22414
    Steffiegirl
    Participant

    Hi JMcG,

    Was it Mr xxxxx that you saw ? just wondered as he was the doc that carried out my SI fusion.
    As for driving, it’ll be at least 6 weeks. Believe me you won’t even want to be in a car let alone drive it. Any jiggling is quite painful. But of course every week improves.
    Sounds like you really do live in the middle of nowhere. Maybe you could arrange something with the school.

    ———————————————-

    Sorry about this but Forum Rules don’t allow us to mention doctor’s names, so I’ve removed the name. Moderator 4

    #22415
    Jan Sadler
    Keymaster

    This topic has become very long which makes it difficult for people with tablets and phones, so I’ve started a new topic (Part 2), so all new posts there now please.

    #47424
    lou
    Participant

    Does anyone have an recommendations of surgeons in the Uk that specialise in assessing si joint dysfunction? I’m living in Ireland but will to travel to Uk. Thanks Louise

    #47425
    Jan Sadler
    Keymaster

    Hi Louise

    I’m sorry about this but Forum Rules don’t allow us to mention doctors’ names, but individual hospitals can be named.

    I suggest you read through this current thread for information and then do a Forum Search for ‘Sacroiliac joint fusion’, and more threads will appear.

    Also maybe some other member will drop by and give us more information, I hope so.

    Good luck with your search.

    Jan at PainSupport

    #47426
    lou
    Participant

    Thank you
    Louise

    #47430
    Lc
    Participant

    Hi Louise, I Have SI joint dysfunction It is a simple test that can be done by a senior physio should be able to do, basically they lie you on a bed flat then bring your leg up to 90 degrees to your body leg bent at knee then push onto knee, if this gives you extreme pain to slightly one side of back through to groin area or near that, then you have problems with SIJ they will also be able to tell if it is a bit lax to when they do this, that was how mine was diagnosed. but they wont operate on me. as I had badly fractured /dislocated pelvis on that side that hurts, also 2 ops on lower spine ,fusion to pelvis. as they think it might cause more damage than i already have. London or Cambridge addenbrooke hospital or nottingham , birmingham ,any city really, just research the ones i mentioned and make your own mind up what you think best, Take care and best wishes, Lee

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